An avid equestrian and educator, Karen has been a columnist at BioNews since 2019. She was diagnosed with Ehlers-Danlos Syndrome in 2009 after a years-long search for a diagnosis that explained her symptoms. Karen enjoys working with her students, riding and caring for her two horses, Cherry and Spotty, and connecting with others in the rare disease community through her work with BioNews.
Ehlers-Danlos syndrome (EDS) is strange. Like many rare diseases, it’s unique to each person. For example, different types of injuries present variables in how a disease manifests. Since many ... Read more
Here in Virginia, all nonessential businesses have been closed for several weeks. Frustratingly, I’m unable to access my two main therapies — massage and Pilates. Both of these activities ... Read more
In this time of uncertainty, stress and anxiety (a very common co-diagnosis with Ehlers-Danlos syndrome) management are critical to my self-care. Like virtually everyone else, my life has been ... Read more
It’s hard to believe that only a week has passed since I wrote my last column. Everything is so different that it feels like months ago, not days. In ... Read more
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