It’s that time of year when it seems as if everyone is getting sick with something, especially at school. Kids…
Karen Del Vecchio
An avid equestrian and educator based in Virginia, Karen Del Vecchio was diagnosed with Ehlers-Danlos syndrome in 2009 after years searching for a diagnosis that explained her symptoms. Since her diagnosis at the Johns Hopkins Connective Tissues Disorder Clinic, she has worked to find ways to manage her symptoms while still maintaining an active lifestyle. Karen enjoys working with her students, riding and caring for her two horses, Cherry and Spotty, and connecting with others in the rare disease community through her writing.
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Articles by Karen Del Vecchio
One thing that’s particularly difficult about managing Ehlers-Danlos syndrome (EDS) is that the same activity can affect me differently…
Recently, I woke up with a slightly sore neck. It wasn’t anything major, but enough to make me notice. I…
Over the past several weeks, I realized just how exhausted I was as winter break approached. As a teacher, I’m…
It’s hard to believe that we’ve reached the end of the semester at the school where I work. I’ve been…
Last week, I had my first physical therapy (PT) appointment for my broken rib and sprained diaphragm. Even after…
Sometimes I feel like my Ehlers-Danlos syndrome (EDS) is just plain weird. I can’t always figure out what’s going…
I’ve had a busy couple of weeks, but I received some good news: After advocating for myself, I was…
Recovery is such an up-and-down experience. I want to move forward, make progress, and get on with life, but that’s…
Last week, my discomfort and frustration with my recent rib and diaphragm injury reached a tipping point. More than anything,…