People in the rare disease community experience a variety of syndromes that vary in both severity and how they affect…
Karen Del Vecchio
An avid equestrian and educator based in Virginia, Karen Del Vecchio was diagnosed with Ehlers-Danlos syndrome in 2009 after years searching for a diagnosis that explained her symptoms. Since her diagnosis at the Johns Hopkins Connective Tissues Disorder Clinic, she has worked to find ways to manage her symptoms while still maintaining an active lifestyle. Karen enjoys working with her students, riding and caring for her two horses, Cherry and Spotty, and connecting with others in the rare disease community through her writing.
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Articles by Karen Del Vecchio
I’m exhausted. I feel like I say that a lot, but it’s true. I’m physically tired, both from going nonstop…
Every day I’m incredibly thankful to be able to see a fantastic massage therapist on a regular basis. People often…
Another Round in the Finger Saga
A few weeks ago I was pretty happy to hear that because my finger injury was a break in the…
Some Days Are Just So 2020
I saw a cartoon the other day that showed a husband and wife sitting on a sofa. The wife…
Well, it’s been a rather eventful week since my last column. I was excited to have an appointment scheduled with…
Life has continued to be a stressful whirlwind of teaching, college counseling, and just trying to manage the…
Last weekend, I had a chance to go to my parents’ house for a while. They live only about 45…
Like many people with Ehlers-Danlos syndrom, I often have gastrointestinal issues. I was diagnosed with a gut motility issue…
Well, the past week and a half has been a baptism by fire, to say the least. I…