One of the great things about horseback riding is that when done correctly, it requires an enormous amount of body…
Karen Del Vecchio
An avid equestrian and educator based in Virginia, Karen Del Vecchio was diagnosed with Ehlers-Danlos syndrome in 2009 after years searching for a diagnosis that explained her symptoms. Since her diagnosis at the Johns Hopkins Connective Tissues Disorder Clinic, she has worked to find ways to manage her symptoms while still maintaining an active lifestyle. Karen enjoys working with her students, riding and caring for her two horses, Cherry and Spotty, and connecting with others in the rare disease community through her writing.
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Articles by Karen Del Vecchio
I realized earlier that I don’t often think of myself as having EDS. It’s not that I don’t recognize or…
Are Blisters Part of My EDS?
Wow, did summer sure decide to turn on its furnace overnight here in Virginia. A day ago, it was in…
Last week, I was able to see my massage therapist for the first time in over three months due…
One thing that’s both particularly difficult as well as sometimes wonderful about Ehlers-Danlos syndrome (EDS) is that, for the most…
Last week, I got some disappointing news. My horse Cherry somehow managed to fracture a bone in her foot.
Ehlers-Danlos syndrome (EDS) is strange. Like many rare diseases, it’s unique to each person. For example, different types of injuries…
I’m Trying to Make Lemon Pie
Like many others, I’ve been forced to accept the current situation as our “new normal” for the foreseeable future. On…
I’m pretty sure this is the longest I’ve gone without a massage since I learned that they’re critical to…
Finding Positivity in Cooking
As I wrote in a recent column, one upside to all the extra time spent at home is that…