As I stood in front of the new students during orientation last week, I tried to ignore my aching knees.
Karen Del Vecchio
An avid equestrian and educator based in Virginia, Karen Del Vecchio was diagnosed with Ehlers-Danlos syndrome in 2009 after years searching for a diagnosis that explained her symptoms. Since her diagnosis at the Johns Hopkins Connective Tissues Disorder Clinic, she has worked to find ways to manage her symptoms while still maintaining an active lifestyle. Karen enjoys working with her students, riding and caring for her two horses, Cherry and Spotty, and connecting with others in the rare disease community through her writing.
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Articles by Karen Del Vecchio
For teachers and students in much of the U.S., it’s that time of year again! As a teacher, I’m back…
When I felt the soreness in my back a few weeks ago, I knew it felt different. It was still…
While I’ve written before about tips for traveling with Ehlers-Danlos syndrome (EDS), I learned some new things recently that…
Before leaving for my recent trip to Europe, I was worried about being able to eat properly while there.
“We’re just going to take a quick run into town. Want to come?” my aunt and cousin, with whom I…
The past few weeks have been busy. I’ve missed writing my last two columns because of a trip abroad to…
Sometimes when I’m lying down, I take stock of how my body feels. Many people do this as a technique…
As I woke up and realized that I’d been sleeping on my right side, I started inwardly cursing. Nothing good…
Not everything that happens to me is related to my Ehlers-Danlos syndrome (although much of it is!). Sometimes accidents…