While I’ve written before about tips for traveling with Ehlers-Danlos syndrome (EDS), I learned some new things recently that…
Karen Del Vecchio
An avid equestrian and educator based in Virginia, Karen Del Vecchio was diagnosed with Ehlers-Danlos syndrome in 2009 after years searching for a diagnosis that explained her symptoms. Since her diagnosis at the Johns Hopkins Connective Tissues Disorder Clinic, she has worked to find ways to manage her symptoms while still maintaining an active lifestyle. Karen enjoys working with her students, riding and caring for her two horses, Cherry and Spotty, and connecting with others in the rare disease community through her writing.
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Articles by Karen Del Vecchio
Before leaving for my recent trip to Europe, I was worried about being able to eat properly while there.
“We’re just going to take a quick run into town. Want to come?” my aunt and cousin, with whom I…
The past few weeks have been busy. I’ve missed writing my last two columns because of a trip abroad to…
Sometimes when I’m lying down, I take stock of how my body feels. Many people do this as a technique…
As I woke up and realized that I’d been sleeping on my right side, I started inwardly cursing. Nothing good…
Not everything that happens to me is related to my Ehlers-Danlos syndrome (although much of it is!). Sometimes accidents…
As I stood up for what felt like the 50th time that day, my knees, back, and hips protested loudly.
The end of the school year is always chaotic, and the arrival of warm weather, since I work on a…
Spring is a busy time of year for me. Not only is school racing toward the finish line, but spring…