After a rough couple of weeks, the past few days have been an exercise in remembering to listen to my…
Karen Del Vecchio
An avid equestrian and educator based in Virginia, Karen Del Vecchio was diagnosed with Ehlers-Danlos syndrome in 2009 after years searching for a diagnosis that explained her symptoms. Since her diagnosis at the Johns Hopkins Connective Tissues Disorder Clinic, she has worked to find ways to manage her symptoms while still maintaining an active lifestyle. Karen enjoys working with her students, riding and caring for her two horses, Cherry and Spotty, and connecting with others in the rare disease community through her writing.
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Articles by Karen Del Vecchio
Two weeks ago, I wrote that I was struggling to get back into the swing of the school year.
Last week, an athletic trainer I was talking to asked why I had kinesiology tape on my leg. I…
After more than 10 years of working in schools, I should be better about managing my Ehlers-Danlos syndrome (EDS)…
As I drove out of the pit and started making my way around the first curve of the track, I…
As I stress on the phone about how I have no idea what my schedule looks like for the…
My shoulder is a common source of Ehlers-Danlos syndrome (EDS) pain. It hasn’t been the same since…
Walking through the kitchen at my mom’s house recently, I was too busy watching her new kitten, Phineas, play to…
It’d been a great day, and despite my Ehlers-Danlos syndrome (EDS), I wasn’t feeling particularly sore. My brother and…
Each morning after I wake up, I take stock of how I feel. Is my back stiff? Does it hurt?…