Sarah Neidler,  —

Rare Disease Day 2023

Recent Posts

• Grateful to be on the upswing after a tough EDS pain flare March 28, 2023
• Unknown COL5A1 mutation found in man with classical EDS symptoms March 27, 2023
• Despite an EDS pain flare and an injury, I’m still moving forward March 21, 2023
• Vascular abnormalities complicate clinical care of kEDS: Case study March 20, 2023
• Managing flare-ups when my emotions and pain are intertwined March 14, 2023
• Preterm delivery, bleeding among pregnancy risks with EDS March 13, 2023
• My chronic pain connects in strange and mysterious ways March 7, 2023
• Trauma apt way of capturing EDS-clinician experience, patients say March 6, 2023
• How I managed my dietary restrictions at a recent conference February 28, 2023
• New gene mutation a likely cause of spondylodysplastic EDS in girl, 7 February 27, 2023