After a tough couple of weeks, life is finally starting to settle back down for me. I’m less stressed, my bruises from a recent fall are healing, and I’m feeling better. It’s taken some time, but I’m on the upswing. During an Ehlers-Danlos syndrome (EDS) pain flare,…
Black and Blue Ribbons
— Karen Del Vecchio

An avid equestrian and educator based in Virginia, Karen Del Vecchio was diagnosed with Ehlers-Danlos syndrome in 2009 after years searching for a diagnosis that explained her symptoms. Since her diagnosis at the Johns Hopkins Connective Tissues Disorder Clinic, she has worked to find ways to manage her symptoms while still maintaining an active lifestyle. Karen enjoys working with her students, riding and caring for her two horses, Cherry and Spotty, and connecting with others in the rare disease community through her writing.
I suspect that many of us with chronic conditions use self-deprecating humor to cope with our frustrations. For me, it’s a way to show others that while my Ehlers-Danlos syndrome (EDS) can be challenging sometimes, it won’t keep me from doing what I want to do. A few…

As I landed face first in the cold mud, I was at least glad that the ground was soft and not frozen. While I marveled at the lack of awareness that led to me tripping and crashing, I was also thinking I had hit my threshold for crappy moments. I’ve…
Some weeks just don’t go how you hope they will. This past week was like that for me, and I can really feel it. Ehlers-Danlos syndrome (EDS) unfortunately means I have a strong physical-emotional connection. Being stressed often makes me stiff and sore, which in turn makes me…
Sometimes, when my back pain flares up, I know exactly what caused it. Other times, I have no idea. Last week fell into the “no clue” category. I knew that my back was sore, but it wasn’t until my massage therapist, Kim, really began working on it that I…
I’m back! I had a fantastic time at my recent work conference and learned so much from the colleagues I met there. Last week, I wrote that I was worried about dining options, as I have food sensitivities from Ehlers-Danlos syndrome as well as alpha-gal syndrome, a…
I’m preparing for a work conference, and for such events my dietary restrictions are a new element I have to consider carefully. Between the general food sensitivities that come with my Ehlers-Danlos syndrome (EDS) and being diagnosed with alpha-gal syndrome, a tick-borne disease that makes me allergic…
It’s the season for dry skin. Between the cold weather and frequent hand-washing, I can’t seem to stay ahead of it. I have a variety of heavy-duty lotions, but sometimes my skin still gets too dry. The worst part about that is the itching. I know, you’re not supposed to…
Back during that crazy cold snap in December, I remembered how amazing heating pads can be. Where I live, houses aren’t built with subzero wind chills in mind. So let’s just say that it got rather nippy inside when the wind chill outdoors hit somewhere around -7 F. I learned…
I don’t sit still well. I’m not sure I would’ve survived elementary school if I hadn’t been in a Montessori-style school that allowed me to move around at will, do my math while lying on the floor, and explore new things. I can sit and focus without trouble when I…
I love dogs — I have two rescue dogs — but some days they sure give me a run for my money. I was recently watching a friend’s dogs while she was out of town. My friend lives on a farm, like I do, but her farm is bigger…
A few days ago, I stumbled upon a recent blog post titled “Come As You Are: The Autoimmune Equestrian” on the website Eventing Nation. Eventing, or the triathlon of horse sports, as it’s often called, has a range of levels, from Olympic all the way down to…
I hope everyone had a restful holiday and New Year’s, however you choose to celebrate! Mine didn’t turn out as I had planned. My Ehlers-Danlos syndrome (EDS) threw in some challenges, but thankfully, a little ingenuity managed to help me figure out a workaround. Like most of the country,…
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