Signing off after 7 great years as an EDS columnist

Dear readers,

After seven years and over 300 columns, it’s time for me to say goodbye. Through this column, I’ve gotten to connect with other amazing people with Ehlers-Danlos syndrome (EDS), and I’m certain I’ve learned more from you all than you have from me. Your comments validating my experiences, lifting me up, and sharing your own stories have been incredible. As I sign off, I want to share a few things with all of you:

I may have EDS, but it doesn’t define me. While it may mean I have to adapt or do things differently sometimes, it’s only a part of who I am. On the flip side, however, I’ve also learned that it’s OK to modify activities because of EDS. Being stubborn and hurting myself gets me absolutely nowhere.

Some days and weeks are more difficult than others, and that’s all right. On the tough days, I remember I only have to do my best, whatever that may look like. There are times when I just need a day or two to relax and recharge, and there’s nothing wrong with that!

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April 14, 2026 Columns by Karen Del Vecchio

Why I am no longer thinking of myself as ‘a mess’ due to EDS

Stay positive, but in a healthy way. Beware toxic positivity, but embrace realistic positivity as much as possible. This doesn’t mean ignoring the hard times, but rather working through what’s difficult and then choosing to focus on the good as much as possible going forward.

We’re all different. For me, massage and fascial counterstrain therapy have been critical to the day-to-day management of my EDS, and a physical therapist who knows me and understands my condition has been vital to my recovery from injuries. Other people may find different modalities beneficial. What works for me might not be the best choice for someone else, and that’s totally OK. I’ve learned to try different things and see what I respond to the best.

Advocate! We know our bodies better than anyone, and sometimes that means being stubborn when we know something’s wrong or we require a different approach. While it’s important to always be kind and considerate, I’ve learned that, on occasion, I need to be steadfast when I know what I need.

It’s been wonderful getting to virtually “know” you all, and I hope you all stay connected to the EDS community. It may not be large, but our collective wisdom and light are powerful.

Best wishes,

Karen

Note: Ehlers-Danlos News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Ehlers-Danlos News or its parent company, Bionews, and are intended to spark discussion about issues pertaining to Ehlers-Danlos.