This spring, my allergies have been terrible. I’ve had seasonal allergies for as long as I can remember, but the past few weeks have been some of the worst I’ve experienced in years. I was hoping that the long cold snap we had this past winter would’ve led to fewer…
Black and Blue Ribbons
— Karen Del Vecchio

An avid equestrian and educator based in Virginia, Karen Del Vecchio was diagnosed with Ehlers-Danlos syndrome in 2009 after years searching for a diagnosis that explained her symptoms. Since her diagnosis at the Johns Hopkins Connective Tissues Disorder Clinic, she has worked to find ways to manage her symptoms while still maintaining an active lifestyle. Karen enjoys working with her students, riding and caring for her two horses, Cherry and Spotty, and connecting with others in the rare disease community through her writing.
It’s been eight months since a fall off my horse led to a badly broken rib and plenty of associated muscle and soft tissue damage. While I’ve made huge strides in my recovery, there are still a few things that aren’t quite back to normal — or at least my…

Injuries, sprains, strains, and bruises are simply a part of life with Ehlers-Danlos syndrome (EDS). Sometimes I know what causes them, and other times I’m clueless. I’m not sure if it’s better to know or not. If I know, I can try to avoid those activities in the future,…
My hip hasn’t bothered me in a while. I guess that means it was about time for it to flare up and remind me that it’s there! That’s how it tends to go with me and my Ehlers-Danlos syndrome (EDS). Some ailments are constant, such as the ones in…
After my alarm went off on a recent morning, I rocketed out of bed when I realized I’d hit snooze so many times that it was more than 30 minutes past when I was supposed to be up. Racing to catch up and get out the door is never a…
I feel like I wear the same three pairs of shoes to work all the time. I don’t know if anyone else notices, but I do. Sometimes I feel self-conscious about it, but the shoes are comfortable. I’ve had issues with plantar fasciitis in the past, and I get blisters…
Some days my body sounds like Rice Krispies that have just had cold milk poured over them. Every time I move I snap, crackle, and pop! With my Ehlers-Danlos syndrome (EDS), there are times when I can’t move without making noise — though sometimes that’s from me groaning as…
I’ve written about how stubborn I am, and how I don’t let my Ehlers-Danlos syndrome (EDS) keep me from doing what I want. I don’t take no for an answer and tend to power through the situation, regardless of its impact on me. It’s a strategy I don’t recommend.
About a week and a half ago, I woke up in the middle of the night sleeping on my right side, which is always bad news. My right shoulder is badly damaged, and after spending over 20 years managing it, my body seems to know instinctively not to roll…
When I feel that sort-of-painful, sort-of-numb vibe in my right arm and shoulder, I know I’m in trouble. It’s not numb in the sense that I can’t feel it, but rather that I’m not processing the pain I know I’m experiencing. That’s when my damaged right shoulder has passed the…
Sometimes managing Ehlers-Danlos syndrome (EDS) feels like choosing the lesser of two evils. Should I do something that helps me in the long run, even if it causes issues in the short term? Currently, I’m having that debate regarding kinesiology tape for my tennis elbow. It helps with the…
I often think about how my Ehlers-Danlos syndrome (EDS) is affected by the weather. I also wonder whether the biggest factor in my EDS symptoms is the weather itself or how my activities change because of it. I’ve been experiencing wild temperature swings lately, ranging from 15 F to…
The past couple weeks have been cold and stressful, so I needed a bit of a pick-me-up. I turned to a television show I hadn’t watched in a while called “The Wizard of Paws,” which follows orthotist Derrick Campana as he makes prosthetic limbs, braces, and carts for animals in…
Recent Posts
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- I know my EDS, so advocating for myself after my injury was the right call June 2, 2026
- Hormone blocker reduces ruptured blood vessel risk in VEDS mouse study May 28, 2026
- My latest EDS pain flare felt different — in the best way May 26, 2026
- Celiprolol may help lower risk of fatal vascular complications in vEDS May 21, 2026
- When it comes to EDS issues, there’s often no rhyme or reason May 19, 2026
- Swallowing issues may complicate meals, daily life for people with hEDS May 14, 2026
- Dismissive doctors cause EDS patients to minimize their own pain May 7, 2026
- The benefits of fascial counterstrain therapy just keep accumulating May 5, 2026
- Guest Voice: With EDS, I accept what’s challenging, embrace what’s possible May 4, 2026