It’s hard to believe that we’ve reached the end of the semester at the school where I work. I’ve been able to fit in a few physical therapy sessions for my broken rib and sprained diaphragm — which have had a cascade of effects thanks to my Ehlers-Danlos…
Black and Blue Ribbons
— Karen Del Vecchio

An avid equestrian and educator based in Virginia, Karen Del Vecchio was diagnosed with Ehlers-Danlos syndrome in 2009 after years searching for a diagnosis that explained her symptoms. Since her diagnosis at the Johns Hopkins Connective Tissues Disorder Clinic, she has worked to find ways to manage her symptoms while still maintaining an active lifestyle. Karen enjoys working with her students, riding and caring for her two horses, Cherry and Spotty, and connecting with others in the rare disease community through her writing.
I suspect that many of us with chronic conditions use self-deprecating humor to cope with our frustrations. For me, it’s a way to show others that while my Ehlers-Danlos syndrome (EDS) can be challenging sometimes, it won’t keep me from doing what I want to do. A few…

Last week, I had my first physical therapy (PT) appointment for my broken rib and sprained diaphragm. Even after an initial evaluation, I wasn’t sure what to expect, and I was a bit nervous about our plan to try the Graston technique. In the end, though, it was…
Sometimes I feel like my Ehlers-Danlos syndrome (EDS) is just plain weird. I can’t always figure out what’s going on or why, which makes it harder to manage. Recently, I’ve been waking up with a stiff neck and back, and sometimes my muscles feel shaky, as if I haven’t…
I’ve had a busy couple of weeks, but I received some good news: After advocating for myself, I was approved to start physical therapy (PT) for my broken rib and sprained diaphragm! Last week, I had an evaluation with the same physical therapist I’ve been seeing since I…
Recovery is such an up-and-down experience. I want to move forward, make progress, and get on with life, but that’s not how recovery works, especially for those of us with Ehlers-Danlos syndrome (EDS). While my overall trajectory is upward, I’m having a tough time with the setbacks and not-so-great…
Last week, my discomfort and frustration with my recent rib and diaphragm injury reached a tipping point. More than anything, I was frustrated by my reactive diaphragm, which made me often feel nauseous. Physical pain I can deal with — those of us with Ehlers-Danlos syndrome (EDS) are used…
It’s been an interesting couple of weeks as I recover from broken ribs and an injured diaphragm. I’m trying to be patient with the healing process, but that’s not something I’m good at! I’d hoped to begin physical therapy (PT) for my diaphragm and sore core muscles, but because broken…
Physical compensation can be such an odd duck to tackle. Right now, I’m struggling not only with broken ribs and an injured diaphragm, but also with the way my body is trying to compensate. I have a lot of back and hip pain, and I noticed recently that…
I stood there staring at a container on the top shelf of my kitchen cabinet, debating if I should reach up for it or not. After falling off my horse about a month ago and winding up with a broken and dislocated rib, I’ve been forced to rest…
Sometimes life teaches us lessons we don’t want to learn. This has been the case for me recently as I deal with a broken and dislocated rib and an injured diaphragm. I’m terrible about pushing myself too hard, usually just plowing forward. I don’t do “slow” well, and…
Did you know you can sprain your diaphragm? I certainly didn’t. Although it’s rare, you can injure it like any other muscle. The past few weeks have been extremely difficult for me after a recent fall off a horse. At first, I thought I’d pulled a muscle in my…
As I leaned over to wash my hands in the restroom, I heard an audible pop. Half a second later, I felt a crunching in my back that I quickly realized was bone scraping against bone. In the next moment, I understood that something in my ribs had moved drastically,…
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