With Christmas rapidly approaching, I’m excited about the holidays — partly because I’ll feel more confident in what I eat this year. Between my alpha-gal syndrome and Ehlers-Danlos syndrome (EDS) food sensitivities, I sometimes have to struggle to enjoy holiday gatherings where food is served. But I’ve…
Black and Blue Ribbons
— Karen Del Vecchio

An avid equestrian and educator based in Virginia, Karen Del Vecchio was diagnosed with Ehlers-Danlos syndrome in 2009 after years searching for a diagnosis that explained her symptoms. Since her diagnosis at the Johns Hopkins Connective Tissues Disorder Clinic, she has worked to find ways to manage her symptoms while still maintaining an active lifestyle. Karen enjoys working with her students, riding and caring for her two horses, Cherry and Spotty, and connecting with others in the rare disease community through her writing.
Recently, I got back on a horse for the first time in several months. It’s been six months since a bad fall resulted in a broken rib and healing complications courtesy of my Ehlers-Danlos syndrome (EDS). While I did ride a horse a few times earlier in my…

This week’s message is simple: Don’t get walking pneumonia from your students (or anyone else). A little while ago, I felt like I was coming down with a cold. I didn’t feel too bad, just a little tired and congested. I figured I’d be fine in a few days. I…
I’ve been thinking lately how awareness of Ehlers-Danlos syndrome (EDS) has changed over the years. Growing up, I’d never heard of it. The first time I did was as an adult, when a doctor at Georgetown University, where I’d been sent to search for a diagnosis, told me he…
It’s the time of year when illness starts whipping through the school halls like wildfire. Recently, we’ve had students out with seemingly everything you can think of, including flu, bronchitis, pneumonia, standard colds, and stomach bugs. As a teacher, I’m pretty well immune to most bugs after more than a…
As I wrote last week, October tends to be a stressful month at my job, where I work with students on their post-high school plans. With November approaching, I’m thankful I feel a little better after some tough Ehlers-Danlos syndrome…
The past few weeks at work have been enormously stressful. We school counselors often refer to this month as “Sucktober,” because it tends to be when the honeymoon of a new school year has worn off. Plus, big college application deadlines are looming, and student energy has begun to lag.
Some aspects of Ehlers-Danlos syndrome (EDS) are just weird. There are the expected symptoms — tight and sore muscles, chronic fatigue, frequent injuries, bruising — but there are also effects that, while related, don’t seem to make much sense. For me, one of those is the…
“Ms. D! Ms. D! Will you come play volleyball with us?” I heard this call on a recent Friday afternoon, when our school’s internet was down and I was supervising kids who were enjoying a little free gym time before heading home for the weekend. If I played, the game…
Last week seemed to drag on forever. Although I was finally feeling better after a rough patch, it got me thinking about how rest is a double-edged sword for me with Ehlers-Danlos syndrome (EDS). I definitely feel that I need more rest than most people, but I also…
Last week when I finally caught up with my massage therapist, Kim, after a six-week break — I was sick, then she was — I told her she’d get to play a game called “Pick Your Train Wreck,” which had her laughing hysterically. Thanks to my Ehlers-Danlos syndrome (EDS),…
The other week, I felt a twinge in my back when I woke up, but I hoped I’d just slept funny and it would soon go away. As the day went on, though, the slight discomfort grew until my back became quite painful. Getting up from a chair was awkward,…
After a rough couple of weeks, the past few days have been an exercise in remembering to listen to my body and take the time I need to heal, as I’ve been recovering from what was likely a case of COVID-19 and a nasty fall caused by the…
Recent Posts
- Overcoming my fear of pain to get back on the horse — literally April 7, 2026
- Taking proactive measures helped me better manage my EDS pain March 31, 2026
- New collaboration launched to improve diagnosis and care for EDS, HSD March 26, 2026
- I’m seeing good results from fascial counterstrain therapy March 24, 2026
- Heavy menstrual bleeding affects 9 in 10 women with EDS: Study March 19, 2026
- Forward progress with physical therapy and Pilates boosts my confidence March 17, 2026
- New study finds autism tied to worse health outcomes in hEDS, HSD March 12, 2026
- New study finds higher vascular complication risk in males with vEDS March 5, 2026
- Zeroing in on ‘fight or flight’ as the reason for my slow recovery from injury March 3, 2026
- Loneliness strongly linked to worse physical and mental health in hEDS February 26, 2026