I vaguely heard a familiar jingle, which in my fuzzy state, confused me. Why was my alarm going off when it was still dark outside? I know I get up early to take care of the animals on my small farm before I go to work, but I don’t…
Black and Blue Ribbons
— Karen Del Vecchio

An avid equestrian and educator based in Virginia, Karen Del Vecchio was diagnosed with Ehlers-Danlos syndrome in 2009 after years searching for a diagnosis that explained her symptoms. Since her diagnosis at the Johns Hopkins Connective Tissues Disorder Clinic, she has worked to find ways to manage her symptoms while still maintaining an active lifestyle. Karen enjoys working with her students, riding and caring for her two horses, Cherry and Spotty, and connecting with others in the rare disease community through her writing.
I suspect that many of us with chronic conditions use self-deprecating humor to cope with our frustrations. For me, it’s a way to show others that while my Ehlers-Danlos syndrome (EDS) can be challenging sometimes, it won’t keep me from doing what I want to do. A few…

Do not fall out of a Kubota vehicle. You’re probably thinking, gee, that’s a pretty obvious statement. Yep, it sure is. And despite using four-wheel minitruck vehicles on farms for over a decade, I managed to take my first tumble off one recently. Despite only sliding a few…
The past few weeks have been a whirlwind. As a teacher, the end of winter always seems to drag, as cold, gray days and lots of sick kids make for a tough couple of months. I was pretty lucky this year, as I’d gotten only a mild cold back in…
My right shoulder has been causing me problems for more than 20 years, though I’ve made much progress. The original injury happened during a soccer game and has reverberated since then, often as either the cause or a participant in my Ehlers-Danlos syndrome (EDS) pain flares. I remember…
When I woke up on a Saturday morning a few weeks ago, I suspected that I might’ve slept in an awkward position. I didn’t feel too bad, though, so I got up and started moving. I was hopeful that I just needed to stretch and loosen up. But I quickly…
The rising and falling temperatures we’ve been experiencing lately have been challenging for me. With Ehlers-Danlos syndrome (EDS), I already tend to have tight muscles that cause pain. It’s a constant battle, regardless of what month of the year it is or whether it’s hot or cold outside.
I’ve been fighting plantar fasciitis on and off for over a year. While I’ve tried to do some things to manage it, mostly I’ve just ignored it. That’s one of my frequent go-to, but not-so-great, coping mechanisms for physical pain. As a result, my foot pain worsened…
I’m a creature of habit. I like my routines, and while I’m perfectly capable of altering them when I need to, I prefer rhythm and predictability in my day-to-day life. I moved a couple months ago, and while I still live in the same community with the same people (and…
When painful Ehlers-Danlos syndrome (EDS) symptoms get me down, I like to imagine that my body’s sore spots have their own personalities. No, I’m not crazy; I don’t actually believe they have their own feelings. But it’s entertaining to pretend they do. I find that joking about it is…
For the first time in years, I didn’t go anywhere at all during my two weeks of winter break from my work as a teacher and college counselor. Usually I visit extended family, but a variety of factors meant that just didn’t happen this year. With a rare stretch of…
I’m pretty sure that my extreme stubbornness is one of the ways I persevere in managing my Ehlers-Danlos syndrome, as well as part of the reason I have pain flares. Recently, my life has been crazy busy. I’ve moved and been trying to get all my teacher…
As a teacher, I couldn’t be more ready for winter break. And I’m not alone: Though we still have a few days before we’re done for a while, the students and staff can’t wait, either. I’m overtired, stressed out, and sore. And while I’m guessing many of my colleagues feel…
Recent Posts
- Attention, cognitive issues tied to pain, body regulation problems in hEDS April 16, 2026
- Why I am no longer thinking of myself as ‘a mess’ due to EDS April 14, 2026
- New study suggests hypermobile EDS and HSD may share a disease spectrum April 9, 2026
- Overcoming my fear of pain to get back on the horse — literally April 7, 2026
- Taking proactive measures helped me better manage my EDS pain March 31, 2026
- New collaboration launched to improve diagnosis and care for EDS, HSD March 26, 2026
- I’m seeing good results from fascial counterstrain therapy March 24, 2026
- Heavy menstrual bleeding affects 9 in 10 women with EDS: Study March 19, 2026
- Forward progress with physical therapy and Pilates boosts my confidence March 17, 2026
- New study finds autism tied to worse health outcomes in hEDS, HSD March 12, 2026