It’s a bit hard to believe it’s already summer. Yet, the blistering heat and lack of rain remind me each morning that, yes, it is actually almost July. This past school year has been exceptionally stressful. While my school was fortunate to meet in person nearly the entire time, the…
Black and Blue Ribbons - a Column by Karen Del Vecchio
A few months ago, when I finally returned to the dentist after being fully vaccinated for COVID-19, we talked about redoing my Invisalign. Although I had braces as a teenager, my teeth began to shift again as I got older. While it wasn’t too bad yet, my dentist told me…
As I sit here working on my column, with a heating pad wrapped around my hip to calm down a recent injury, I wonder about the similarities among those of us with various rare disorders. Of course, someone like me…
As I often do, I had an interesting discussion with my rock-star massage therapist Kim last week. She’d been on vacation for a few weeks, so I’d missed a session and was feeling quite sore. My hip, which I injured a few months ago, recently decided to get…
Well, it’s official. The COVID-19 school year is officially complete! For students, at least. As faculty, we still have a few weeks left, but I still can’t believe it’s over already. This year has felt both like it’s lasted an eternity and gone by in a flash. There have been…
Shoes and I have an interesting relationship. I’ve said before that I seem to be much more susceptible to blisters, but my flat feet are a different issue. Like many people with Ehlers-Danlos syndrome (EDS), I’ve always had flat feet. That was one of the many things doctors…
Although sleeping helps me feel my best, it is also my greatest adversary. Like many people with Ehlers-Danlos syndrome, chronic exhaustion is a constant battle. No matter how much sleep I get, I’m always tired. Add the fact that it’s crunch time at the end of a school year,…
Sometimes I wonder how much of my Ehlers-Danlos syndrome (EDS) is visible to others. Apart from the obvious things, like my bruising, I think much goes unnoticed. This is partly because I have more moderate EDS, so I don’t have as many visible features as those with more severe cases.
Several years ago I learned an important distinction about positivity. For a long time, I had thought that positivity meant ignoring what was upsetting or not going right so that you could “pretend” to be happy. I had always thought that was somewhat ridiculous, because pretending that the negatives don’t…
The past few weeks have been a whirlwind. As part of my job as a college counselor, I’m working with high school seniors to help them make college decisions. As someone who lives and works on a farm, spring is, of course, when chores multiply. May is always exceptionally busy…
Recent Posts
- Taking proactive measures helped me better manage my EDS pain March 31, 2026
- New collaboration launched to improve diagnosis and care for EDS, HSD March 26, 2026
- I’m seeing good results from fascial counterstrain therapy March 24, 2026
- Heavy menstrual bleeding affects 9 in 10 women with EDS: Study March 19, 2026
- Forward progress with physical therapy and Pilates boosts my confidence March 17, 2026
- New study finds autism tied to worse health outcomes in hEDS, HSD March 12, 2026
- New study finds higher vascular complication risk in males with vEDS March 5, 2026
- Zeroing in on ‘fight or flight’ as the reason for my slow recovery from injury March 3, 2026
- Loneliness strongly linked to worse physical and mental health in hEDS February 26, 2026
- The ‘aches and pains forecast’ that validated my EDS symptoms February 24, 2026