Black and Blue Ribbons - a Column by Karen Del Vecchio

massage, 2020, finger, fracture, awareness, sign, surge capacity, tension

An avid equestrian and educator, Karen has been a columnist at BioNews — the publisher of this site — since 2019. She was diagnosed with Ehlers-Danlos syndrome in 2009 after years of searching for a diagnosis that explained her symptoms. Karen enjoys working with her students, riding and caring for her two horses (Cherry and Spotty), and connecting with others in the rare disease community through her writing.

Sometimes, You’re the Wunder-duck

While I love virtually all animals, I’m not the biggest fan of the Muscovy ducks that live on the farm. Well, I should clarify that: I’m pretty entertained by the ducks themselves, but I’m getting tired of cleaning and dumping the horses’ water troughs because the ducks took a…

My EDS Physical Therapy Helped an Old Injury

I realize that in most of my columns I’ve talked about my injured ankle and knee, as those are the wounds I’ve been having the most trouble with following my fall off Spotty in November. Honestly, though, the joint that by far tends to cause me the most trouble…

Missing Pilates Makes a Difference

The past two weeks have been a bit crazy. The owner of the farm where I live had ACL and meniscus reconstruction surgery, so I’ve been doing more farm chores, like I do when she’s away. As I’ve talked about in earlier…

Balancing Sleep and a Busy World

Perhaps one of the toughest things about Ehlers-Danlos syndrome (EDS) is the chronic fatigue. It’s invisible, so those around you often don’t understand, and we live in a fast-paced world where there just aren’t enough hours in the day. I work full time as a college counselor at a…

Pilates Has Brought Me Many Unexpected Benefits

As I’ve shared before, Pilates has been an enormous help in managing my Ehlers-Danlos syndrome (EDS). Although I was introduced to it as recently as December, I have noted improvements in my pain level after only a few sessions. The fact that I can actually do Pilates doesn’t make…