Columns

Hello world, I’m Lacy Rosenbaum, your hot-off-the-press Ehlers-Danlos News columnist. I’m lucky enough to call a stunning corner of Montana home. It’s the kind of postcard beauty that makes you want to get out and explore — except there are far too many days when my body says no!…

Note: This column describes the author’s own experiences with pregabalin and nortriptyline. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. In the end, it took the way that my daughter and I stood, plus a little bit of luck, for…

I tend to get a little nervous before doctors’ appointments, whether they’re in person or virtual. One reason is that I want to make the most of the time I have. I want to be able to talk about my symptoms, discuss any new issues, and ask questions. I also…

Summer. A short, but cherished season here in Montana, land of long winters. As soon as the first warm day arrives and the sun shines brightly over our valleys, majestic mountains, and many lakes, I’m eager to get outside and make memories with my family! But I soon remember that…

A visit to the dentist can make anyone nervous. That’s certainly true for me, especially for my biannual cleanings. Almost every time I leave the dental hygienist’s chair, I don’t just have clean teeth; I also have a mouthful of painful micro-cuts, excessive bleeding, and an outbreak of awful canker…

Dear readers, After seven years and over 300 columns, it’s time for me to say goodbye. Through this column, I’ve gotten to connect with other amazing people with Ehlers-Danlos syndrome (EDS), and I’m certain I’ve learned more from you all than you have from me. Your comments validating my…

As I walked outside and felt the heat and humidity envelop me, I realized that summer has arrived early here in Virginia. Summer humidity is sweltering, and so far this year, we’ve been breaking both heat and drought records, which is a really tough combo when, like me, you have…

It’s been eight months since a fall off my horse led to a badly broken rib and plenty of associated muscle and soft tissue damage. While I’ve made huge strides in my recovery, there are still a few things that aren’t quite back to normal — or at least my…

Sometimes it’s hard to explain what I mean when I say I feel like a twisted pretzel. While my physical therapist (PT) and massage therapist understand, they’re also trained to look for such anomalies. I don’t think it’s something the average person can see, but I definitely feel it when…

Sometimes Ehlers-Danlos syndrome (EDS) just doesn’t seem to have a discernible pattern to me. While I’ve been doing much better overall recently, thanks to fascial counterstrain physical therapy (FCS), that doesn’t mean that I don’t have triggers or pain flares. It just means that hopefully they’re less…