Black and Blue Ribbons - a Column by Karen Del Vecchio

massage, 2020, finger, fracture, awareness, sign, surge capacity, tension An avid equestrian and educator, Karen has been a columnist at BioNews — the publisher of this site — since 2019. She was diagnosed with Ehlers-Danlos syndrome in 2009 after years of searching for a diagnosis that explained her symptoms. Karen enjoys working with her students, riding and caring for her two horses (Cherry and Spotty), and connecting with others in the rare disease community through her writing.

Staying Warm Is Critical for Maintaining Limber Muscles

Is it spring yet? Like for many people in the U.S., the weather in Virginia has been less than stellar lately. We’ve had record-breaking rainfall, and while I’m thankful we’ve been spared the ice storms and frigid conditions of other states, it’s still pretty miserable here. The last two weeks,…

EDS Has Taught Me to Be More Positive

I’m certain I don’t have to tell anyone reading this column that having Ehlers-Danlos syndrome (EDS) means overcoming a lot of hurdles and other negative things. These include chronic pain, fatigue, ease of injury, gastrointestinal issues, anxiety and other mental health concerns — and those are just the start…

Sharing Some Light This Holiday Season

I love the holidays, especially Christmas. This year is certainly different in just about every way, except for one: If anything, I think we all need more holiday cheer to shine some light during this incredibly difficult time. This holiday, like Thanksgiving, will look nothing like normal. My…

Slow and Steady Wins the Recovery Race

Last week, I had another follow-up appointment for my finger. In late September, I had surgery to repair a badly broken right ring finger from a freak accident. It was a dislocated spiral fracture, and when the surgeon actually got in there during surgery, he found more bone fragments…