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I Manage Pain Flares with Physical Activity

I’ve made a lot of progress in learning how to manage Ehlers-Danlos syndrome (EDS), but I still experience pain flares. My most recent flare improved dramatically after a massage. I was mostly back to normal (at least my version of normal), but then I went to a conference. I…

How I Managed My Latest Pain Flare

The past few weeks have been a total whirlwind. I’m a college counselor at a local high school, so September and October are the busiest months for me. They lead up to Nov. 1, which is a major college application deadline. I’m slammed with work and also trying to train…

It All Comes Down to Attitude

Generally speaking, I’m not someone who gets angry. It’s just not my style. I like being productive in all aspects of my life, and I feel that anger is counterproductive. Now, I say that, but I get easily frustrated, which one could argue isn’t far off from anger. But that’s…

Embracing Structure in My EDS Journey

Ehlers-Danlos syndrome (EDS) is teaching me that I want and need structure in every aspect of my life. Much like the presence of EDS, my need for structure and routine is something that has gone unrecognized for most of my life, despite living with the consequences. Until a few…

The Many Paradoxes of Life with EDS

I can’t believe it’s the middle of August. Where did the summer go? On Monday, I returned to work as a college counselor for high school students, yet graduation seems as if it were yesterday. I’ve been super busy this summer, but it’s been good. …