Well, it’s officially 2020! It feels odd to say that. Then again, I’m pretty sure I said the same thing back in 2000 and 2010, so I digress. To wrap up 2019, I tried a new activity that I found both beneficial and enjoyable — yoga. My extended family traditionally…
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I love the holiday season. Time spent with family, brisk winter air, time off from work (a bonus to working for a school), and giving gifts that make people smile — it’s hard to top that! I also try my best to make sure that my Ehlers-Danlos syndrome (EDS) affects…
As someone with Ehlers-Danlos syndrome (EDS), bruising is just a part of life. I rarely give my bruises more than a passing glance anymore. They’re just of a part of my natural complexion at this point. People who aren’t used to my bruising tend to be pretty shocked, and…
The past few weeks have gone by like a whirlwind. My horse, Cherry, and I had an awesome time at our last show of the season, most of the seniors I work with have finished their college applications, and I got together with two of my closest friends…
While in the mindset of slowing down and allowing myself time to recharge, I decided to take a short vacation. I rarely take time out because I always have so much going on. But I reached out to my two closest friends from college and asked if they wanted…
Taking Time to Recharge
Summer and fall have been a nonstop whirlwind. A few weeks after graduation (I work as a college counselor at a private high school), the owner of the farm where I live had major knee surgery. That put me on farm duty for several months. My brother got married. And…
In the equestrian sport of eventing, we use a lot of gear. One piece of that puzzle is the safety gear we wear, particularly in the cross-country phase, where we jump solid obstacles in open fields or in the woods. Anytime a horse and rider are out on cross-country, riders…
Recently, Ehlers-Danlos syndrome (EDS) made news headlines. That doesn’t happen often. Actress Lena Dunham announced that she has EDS in response to questions about a photo of her using a mobility aid. While I’d heard her name, I knew little about the actress, but I want to give her…
Acting Up, Ehlers-Danlos Style
A few months ago, our community’s theater company held auditions for two productions. At the suggestion of someone whose opinions I trust, I contacted the theater company and arranged to audition for one. The river that flows from Egypt straight to my house In my excitement to try something new…
I’ve previously discussed how having Ehlers-Danlos syndrome (EDS) means that I often have to take side roads to reach my goals or engage in activities I enjoy. While I used to find that immensely frustrating, I now view it as another challenge to face head-on. In my work with…
Recent Posts
- Genetic changes across 3 biological systems may drive hypermobile EDS February 12, 2026
- Are fatigue, pain, and soreness an EDS flare-up or a winter illness? February 10, 2026
- Global study reveals the complex web of health issues linked to hEDS February 5, 2026
- 73% of EDS patients second-guess pain, often after clinician skepticism: Study January 29, 2026
- My EDS pain seems to operate by different rules each day January 27, 2026
- New study urges platelet testing to manage bleeding risk in EDS January 22, 2026
- Another EDS flare is a real pain in the neck January 20, 2026
- Gut issues often drive hEDS patients to restrict their diets January 15, 2026
- I’ve been slowing down lately while continuing to recover from a fall January 13, 2026
- Compression garment use may reduce pain in hypermobile EDS, HSD: Study January 8, 2026