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A distressing observation A couple of nights ago, I watched my youngest child as she settled in to go to sleep. She wrestled with her pillow, trying to position it just so because it hurt her neck. In the process, she managed to hurt her chest. She adjusted herself and…

I can manage to do most of what I want to, despite my Ehlers-Danlos syndrome. Sometimes, though, I have to get creative to pull it off. Because my joints are too loose, my muscles overcompensate by tightening up — that’s one of the reasons why massage is so helpful.

Overall, things have been going great in my life. My new horse Cherry is learning quickly, my other horse Spots is healing, and Pilates and massages generally keep me pretty well put together. Nevertheless, at times my body decides it just doesn’t feel like cooperating and rebels. As…

I write quite a bit about looking for silver linings, embracing joy where I can find it, and celebrating small successes. I embrace thankfulness and enjoy a positive attitude. But before we go any further, I would like to clarify something important. It’s OK to experience and express negative…

Back in November when I fell off my horse Spotty, I badly sprained my left medial collateral ligament and my right ankle. I could barely walk. Limping was entertaining because I didn’t have a “good” leg to limp on. Crutches wouldn’t have helped — with no good leg, there…

One common issue that many people with an Ehlers-Danlos syndrome (EDS) deal with is that we “look normal.” While I’m grateful that it’s not blatantly obvious to most people that I have EDS, there are times when it can make things awkward. That well-meaning person who says, “One day you’ll…

There was a time when lampworking was my thing. In fact, my life revolved around it. What began as a hobby grew into a business. When I wasn’t behind a flame melting glass, I was on the phone or on internet message boards furthering my knowledge and sharing it with…

In the intervening weeks since my competition horse Spotty was diagnosed with a disorder affecting his legs, I realized that if I wanted to continue to improve my riding and be able to compete on occasion, I’d have to look for another horse. Now don’t worry, Spotty isn’t going anywhere;…

While you likely know by now that I have horses, you may not realize that I live on a small, private, horse-breeding farm. The owner is active duty in the military, so I have my own place on the farm that allows me to help whenever needed. For non-horse…

About four years ago, I came out of a multiyear haze that I refer to as the “baby coma.” I hadn’t fully recovered following the birth of my baby. A merciful obstetrician had induced labor at 39 weeks because, at that stage, I couldn’t move without considerable pain. Following delivery,…