In the not-too-distant past, I hated shopping. Walking across parking lots and winding my way through store aisles was incredibly tiring, thanks to my Ehlers-Danlos syndrome (EDS) and comorbid conditions. Prolonged standing and walking led to severe abdominal pains and vertigo. Sometimes I would have to squat in…
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It turns out the crazy busy week paid off. I spent last weekend at a horse show in North Carolina, and Cherry and I had an amazing time! It was our first time showing at the Beginner Novice level, where the jumps are a maximum height of 2 feet…
Surviving the Chaos of October
Fall in the college counseling profession is like running the proverbial rat race. There simply aren’t enough hours in the day for the amount of work that needs to be done. Students procrastinate and need help at the last minute. Students who don’t…
Let’s Dish About POTS
Many people with Ehlers-Danlos syndrome (EDS) experience a form of dysautonomia called postural orthostatic tachycardia syndrome (POTS). Dysautonomia is a disorder of the autonomic nervous system, which controls the body’s subconscious functions including digestion, heart rate, perspiration, and breathing. Symptoms of POTS, predominantly an elevated heart rate, are…
I’ve made a lot of progress in learning how to manage Ehlers-Danlos syndrome (EDS), but I still experience pain flares. My most recent flare improved dramatically after a massage. I was mostly back to normal (at least my version of normal), but then I went to a conference. I…
The past few weeks have been a total whirlwind. I’m a college counselor at a local high school, so September and October are the busiest months for me. They lead up to Nov. 1, which is a major college application deadline. I’m slammed with work and also trying to train…
Injuries happen just like that. It’s usually senseless: a step taken too soon, an unexpected encounter with a door jamb, lifting a handbag on the way out, driving a car. A small, random action can cause a dislocation or subluxation and change the course of the next few days,…
Life never seems to slow down. Every time I think I have time to take a breath and catch up around the house (you know, cleaning, laundry, dishes …), it’s bedtime and I still have a long list of uncompleted chores. That used to cause…
So after last week’s frustration, this week was about refocusing and figuring out what my “side road” would look like. I don’t respond well to the feeling that my Ehlers-Danlos syndrome (EDS) is keeping me from doing something…
It All Comes Down to Attitude
Generally speaking, I’m not someone who gets angry. It’s just not my style. I like being productive in all aspects of my life, and I feel that anger is counterproductive. Now, I say that, but I get easily frustrated, which one could argue isn’t far off from anger. But that’s…
Recent Posts
- Long stretches of driving trigger an EDS pain flare-up April 28, 2026
- Dentists may spot EDS signs during routine exams, study finds April 23, 2026
- Attention, cognitive issues tied to pain, body regulation problems in hEDS April 16, 2026
- Why I am no longer thinking of myself as ‘a mess’ due to EDS April 14, 2026
- New study suggests hypermobile EDS and HSD may share a disease spectrum April 9, 2026
- Overcoming my fear of pain to get back on the horse — literally April 7, 2026
- Taking proactive measures helped me better manage my EDS pain March 31, 2026
- New collaboration launched to improve diagnosis and care for EDS, HSD March 26, 2026
- I’m seeing good results from fascial counterstrain therapy March 24, 2026
- Heavy menstrual bleeding affects 9 in 10 women with EDS: Study March 19, 2026