So after last week’s frustration, this week was about refocusing and figuring out what my “side road” would look like. I don’t respond well to the feeling that my Ehlers-Danlos syndrome (EDS) is keeping me from doing something…
Columns
It All Comes Down to Attitude
Generally speaking, I’m not someone who gets angry. It’s just not my style. I like being productive in all aspects of my life, and I feel that anger is counterproductive. Now, I say that, but I get easily frustrated, which one could argue isn’t far off from anger. But that’s…
Things just don’t slow down for me this time of year. Break? What’s that? The school year is starting. It’s college application season for my seniors, competition season for me, and I’m teaching an additional class this year on top of my already hectic schedule. Sheesh. Sometimes I wonder how…
Ehlers-Danlos syndrome (EDS) is teaching me that I want and need structure in every aspect of my life. Much like the presence of EDS, my need for structure and routine is something that has gone unrecognized for most of my life, despite living with the consequences. Until a few…
I wrote about it in a previous column, but seriously, how did summer go by so quickly? Now don’t get me wrong, I’ll be thrilled when fall and winter get here — I’d rather have cold weather than hot any day — but it seems as if the summer’s…
I can’t believe it’s the middle of August. Where did the summer go? On Monday, I returned to work as a college counselor for high school students, yet graduation seems as if it were yesterday. I’ve been super busy this summer, but it’s been good. …
Subluxations and dislocations are frequent complications of Ehlers-Danlos syndrome. Over the past year, my roving joints have made grocery shopping more painful. I have also suffered some acute bruising of my ego from squatting in the grocery store checkout line to relieve the symptoms of postural orthostatic tachycardia…
A couple of months ago, I started to reduce my dairy intake simply because I’m not a fan of factory farming practices. I hadn’t intended to stop eating dairy altogether, but I wanted to choose produce from smaller and more humane farms. I had noticed…
I wrote last week’s column about Wunder-duck early, as my brother was getting married and I knew the occasion would be semi-chaotic. And so it was, but it was wonderfully semi-chaotic. I got to spend five…
Many of us are familiar with the Americans with Disabilities Act (ADA) insofar as it guarantees access to public buildings and reasonable workplace accommodations, and protects against employment discrimination. I recently learned that the ADA also allows for accommodations that I need in the courthouse. Over the past year,…
Recent Posts
- Eating disorder screen may overestimate risk in hEDS, HSD September 11, 2026
- The long quest to learn the reasons for my strange symptoms and illnesses September 8, 2026
- Androgen hormones may affect hypermobile EDS symptoms in women August 28, 2026
- Guest Voice: Changing my treatment plan resolved years of EDS symptoms August 27, 2026
- My team of doctors is helping me lead a healthier life with EDS August 25, 2026
- Road to dual hEDS-autism diagnoses can be long but empowering August 21, 2026
- Short summer seasons teach me some lifelong lessons about living with hEDS August 18, 2026
- Avoiding the painful consequences of dental cleanings with hEDS August 11, 2026
- Chronic pain condition 10 times more likely for those with EDS, per study August 7, 2026
- Nearly half of EDS patients report moderate to severe pain at diagnosis July 31, 2026