The past two weeks have been a bit crazy. The owner of the farm where I live had ACL and meniscus reconstruction surgery, so I’ve been doing more farm chores, like I do when she’s away. As I’ve talked about in earlier…
Columns
Pain and the reduced function of my hands significantly affect my life. Knowing what components are structurally compromised and vulnerable to injury due to Ehlers-Danlos syndrome (EDS) aids me in the prevention and treatment of my injuries. Puppets Have you ever seen a toy grabber hand? It is a…
Last week, I shared a positive update about my new horse, Cherry. A few days later, Spotty had his six-month checkup for his ligament injury. We got good news from the vet! He’s healing well enough that we can move to the next phase of his rehab,…
Last weekend was my first show after falling off my horse last November and badly spraining my right ankle and left MCL. It also was my first show with my new horse, Cherry.
Pants. For many years, women rallied for the ability to wear pants instead of skirts and dresses. As an extremely active individual, most of the time I fall into the category of women who prefer to wear pants rather than skirts. I get tired…
Balancing Sleep and a Busy World
Perhaps one of the toughest things about Ehlers-Danlos syndrome (EDS) is the chronic fatigue. It’s invisible, so those around you often don’t understand, and we live in a fast-paced world where there just aren’t enough hours in the day. I work full time as a college counselor at a…
As I’ve shared before, Pilates has been an enormous help in managing my Ehlers-Danlos syndrome (EDS). Although I was introduced to it as recently as December, I have noted improvements in my pain level after only a few sessions. The fact that I can actually do Pilates doesn’t make…
When you live on a farm, you are witness to many bizarre events. Animals are amazing and wonderful, but they have their moments and a baffling knack for getting into unusual situations. I have an apartment on a 17-acre horse farm that also has pigs, ducks, chickens, dogs, cats,…
A distressing observation A couple of nights ago, I watched my youngest child as she settled in to go to sleep. She wrestled with her pillow, trying to position it just so because it hurt her neck. In the process, she managed to hurt her chest. She adjusted herself and…
I can manage to do most of what I want to, despite my Ehlers-Danlos syndrome. Sometimes, though, I have to get creative to pull it off. Because my joints are too loose, my muscles overcompensate by tightening up — that’s one of the reasons why massage is so helpful.
Recent Posts
- Road to dual hEDS-autism diagnoses can be long but empowering August 21, 2026
- Short summer seasons teach me some lifelong lessons about living with hEDS August 18, 2026
- Avoiding the painful consequences of dental cleanings with hEDS August 11, 2026
- Chronic pain condition 10 times more likely for those with EDS, per study August 7, 2026
- Nearly half of EDS patients report moderate to severe pain at diagnosis July 31, 2026
- Pelvic muscle, nerve dysfunction may drive urinary symptoms in hEDS July 24, 2026
- Study finds higher allergy rates in children with hypermobile EDS July 17, 2026
- Hypermobility signs common in women with pelvic pain, study finds July 10, 2026
- Signing off after 7 great years as an EDS columnist July 9, 2026
- Psychiatric drugs don’t affect heart rhythms in hEDS, study finds June 25, 2026