Ehlers-Danlos syndrome (EDS) is a rare condition that affects connective tissue, which is important for maintaining skin elasticity and the shape of organs. Many patients experience hypermobility of joints (where joints extend more than they should, causing damage) and hyper flexibility of the skin (abnormally fragile and stretchy skin).
Health Insights
Tips for Schooling with EDS
For parents of children with a rare disease like Ehlers-Danlos syndrome (EDS), managing the disease and going to school can be challenging. Here are a few tips to help: File a treatment plan with the school A treatment plan contains information about your child’s disease, what the treatments…
Tips for Making Every Doctor’s Visit Count When you Have EDS
Effectively managing a rare disease like Ehlers-Danlos syndrome (EDS) can be challenging. Here are five tips to get the most out of your doctor’s appointments: What’s new since the last appointment? Do you have any new symptoms? Have any medications that you take changed (even over-the-counter ones)? What have…
Ehlers-Danlos syndrome (EDS) is the name given to a group of genetic disorders that weaken the connective tissues supporting muscles, blood vessels, and other tissues. Often, the first time patients hear about EDS is when they are diagnosed, which makes some wonder why they have been diagnosed with a…
5 Tips for EDS Wound Care
Ehlers-Danlos syndrome (EDS) is a rare heritable disease, which affects the connective tissue. Patients generally have soft, velvety skin that is fragile and does not heal quickly. In many types of EDS, scar tissue is slow to form and is easily damaged, with scars to stretch and expand over…
FAQs in Ehlers-Danlos Syndrome
A diagnosis of Ehlers-Danlos syndrome (EDS) often leaves patients and their families with many questions. It can be hard to find information about rare diseases and connect with other patients. Here are some frequently asked questions about EDS. What is EDS? EDS is a group of disorders that weaken the…
Recent Posts
- Loneliness strongly linked to worse physical and mental health in hEDS February 26, 2026
- The ‘aches and pains forecast’ that validated my EDS symptoms February 24, 2026
- HSD, hEDS tied to diagnostic delays, poor quality of life in aging women February 19, 2026
- I’m trying different types of physical therapy to keep making progress February 19, 2026
- Genetic changes across 3 biological systems may drive hypermobile EDS February 12, 2026
- Are fatigue, pain, and soreness an EDS flare-up or a winter illness? February 10, 2026
- Global study reveals the complex web of health issues linked to hEDS February 5, 2026
- 73% of EDS patients second-guess pain, often after clinician skepticism: Study January 29, 2026
- My EDS pain seems to operate by different rules each day January 27, 2026
- New study urges platelet testing to manage bleeding risk in EDS January 22, 2026