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Researchers called on doctors to initiate conversations about social media with their hypermobile Ehlers-Danlos syndrome (hEDS) patients to help them find tools they can use and avoid misinformation. People with hEDS frequently use social media to connect with each other and learn about their disease, though social media can…

Constipation and trouble swallowing are common digestive symptoms in children and young adults with joint hypermobility syndrome or hypermobile Ehlers-Danlos syndrome (hEDS), according to a single-center study in the U.S. Also, about 20% of patients had eosinophilic esophagitis, an allergic reaction in the esophagus — the muscular tube that…

About every third child with Ehlers-Danlos syndrome (EDS) and every fourth with generalized joint hypermobility at a clinic in Canada had one or more bone fractures, but none had occurred in the first year of life, a study finds. Most fractures were in the limbs as the result of…

Jaw pain, fatigue, and other symptoms of temporomandibular disorders (TMD) are quite common in women with hypermobile Ehlers-Danlos syndrome (hEDS) or hypermobility spectrum disorders (HSD), according to a recent study from Sweden and Finland. TMD are conditions affecting the joint that connects the jawbone to the skull. They may…

Being male and having certain facial features, high blood pressure, and some disease-causing mutations all are risk factors for the occurrence of major blood-vessel-related events and/or an early age at the time of their onset among people with vascular Ehlers-Danlos syndrome (vEDS), a…

An altered breathing pattern in hypermobile Ehlers–Danlos syndrome (hEDS) may be linked to difficulty sensing how much air fills the lungs with each breath and in controlling ventilation, especially when engaging in a cognitive task, a study suggests. The study, “Impairment of lung volume perception and breathing control…

The Ehlers-Danlos Society will host a five-day conference in July, aiming to help people affected by Ehlers-Danlos syndrome (EDS) and hypermobility spectrum disorders (HSD) learn useful tips for managing the conditions and connect with others in the EDS/HSD community. The event, “EDS and HSD: From Head to Toe,”…

Two brothers with kyphoscoliotic Ehlers-Danlos syndrome (kEDS) had a spontaneous abdominal aneurysm, a ballooning of blood vessel walls, which was successfully corrected with surgery, according to a case report. kEDS is one of 13 types of EDS, a group of genetic disorders that affect the connective tissues, which…

A survey of adults with hypermobile Ehlers-Danlos syndrome (hEDS) found that receiving a diagnosis led to a sense of relief, helped patients manage their symptoms and prepare for the future, and had a positive impact on their quality of care, support network, and overall well-being. Still, more than half…

This May, people around the globe will participate in a number of ways to raise awareness about Ehlers-Danlos syndrome (EDS) and hypermobility spectrum disorder (HSD). The annual awareness month campaign targets not only the general public, but also policymakers, public authorities, industry representatives, health professionals, and scientists. In the…