Filing a Treatment Plan with School When Your Child Has EDS

Filing a Treatment Plan with School When Your Child Has EDS
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Managing Ehlers-Danlos syndrome (EDS) can be challenging, especially in a school environment. Many parents find it difficult to ensure that their child receives a good education while balancing safety and disease management.

Developing an individualized education plan with the school can help to ensure that your child receives any necessary accommodations. It can also be helpful to file a treatment plan with the school, especially if your child needs treatment during the school day.

What is a treatment plan?

A treatment plan contains information about your child’s disease, its management, and what to do in case of an emergency. If your child has dietary requirements, they should be included in the treatment plan.

How to get started when preparing a treatment plan?

Begin by talking with your child’s physician about the treatment plan. Then meet with the school nurse and discuss the treatment plan and your child’s needs.

What needs to be on file?

Make sure that the nurse has your contact numbers on file for emergencies, and notify them immediately of any changes. You may also want to make sure that the school office and administration are aware that your child has special requirements.

Depending on your child’s needs, you may need to have their primary care physician’s number on file with the school in case of an emergency.

Make sure that the treatment plan on file at the school is updated after each doctor’s visit, whether or not there have been any changes.

 

Last updated: Dec. 12, 2019

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Ehlers-Danlos News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Emily holds a Ph.D. in Biochemistry from the University of Iowa and is currently a postdoctoral scholar at the University of Wisconsin-Madison. She graduated with a Masters in Chemistry from the Georgia Institute of Technology and holds a Bachelors in Biology and Chemistry from the University of Central Arkansas. Emily is passionate about science communication, and, in her free time, writes and illustrates children’s stories.
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Özge has a MSc. in Molecular Genetics from the University of Leicester and a PhD in Developmental Biology from Queen Mary University of London. She worked as a Post-doctoral Research Associate at the University of Leicester for six years in the field of Behavioural Neurology before moving into science communication. She worked as the Research Communication Officer at a London based charity for almost two years.
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Emily holds a Ph.D. in Biochemistry from the University of Iowa and is currently a postdoctoral scholar at the University of Wisconsin-Madison. She graduated with a Masters in Chemistry from the Georgia Institute of Technology and holds a Bachelors in Biology and Chemistry from the University of Central Arkansas. Emily is passionate about science communication, and, in her free time, writes and illustrates children’s stories.
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