How to Deal With Bowel Issues in EDS

How to Deal With Bowel Issues in EDS
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People with Ehlers-Danlos syndrome (EDS) may experience bowel issues such as intestinal dysmobility. Here are ways to help manage these symptoms.

Why does EDS cause bowel issues?

EDS affects the connective tissue, which is present throughout the body, including in the bowel. Connective tissue is important in facilitating the movement needed to expel body waste. Any abnormality in these tissues can, therefore, disrupt such function.

What kinds of issues do patients experience?

A National Human Genome Research Institute review of the medical charts of 51 EDS patients for gastrointestinal findings showed that 72% had some combination of gastroesophageal reflux disease, irritable bowel syndrome (IBS), and inflammatory bowel disease (IBD).

Depending on EDS type, problems with bowel function can cause:

How do doctors treat bowel issues?

If you have EDS and are experiencing gastrointestinal issues, your doctor will likely conduct several tests to pinpoint the cause or location of your problems and work out a treatment plan. It’s recommended that each issue related to bowel function be addressed according to current standards.

Because most EDS patients are prescribed numerous medications and may take food supplements, there may be side effects that could exacerbate bowel problems.

Inactivity can also exacerbate some conditions such as constipation. Work with a physiotherapist to learn how you can exercise safely.

Can diet help?

Diet affects the health of the gut microbiome, so it may help to regularly consume nutrient-dense foods. Some researchers recommend a fiber-rich diet adequate in glycine, proline, lysine, and vitamin C. Probiotics such as kefir, yogurt, kimchi, or sauerkraut may also help.

Also consider avoiding fried foods and refined carbohydrates, limiting alcohol intake, eliminating artificial sweeteners, and reducing the consumption of saturated fats and cured meat.

 

Last updated: Aug. 12, 2020

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Ehlers-Danlos News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health providers with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Mary M. Chapman began her professional career at United Press International, running both print and broadcast desks. She then became a Michigan correspondent for what is now Bloomberg BNA, where she mainly covered the automotive industry plus legal, tax and regulatory issues. A member of the Automotive Press Association and one of a relatively small number of women on the car beat, Chapman has discussed the automotive industry multiple times of National Public Radio, and in 2014 was selected as an honorary judge at the prestigious Cobble Beach Concours d’Elegance. She has written for numerous national outlets including Time, People, Al-Jazeera America, Fortune, Daily Beast, MSN.com, Newsweek, The Detroit News and Detroit Free Press. The winner of the Society of Professional Journalists award for outstanding reporting, Chapman has had dozens of articles in The New York Times, including two on the coveted front page. She has completed a manuscript about centenarian car enthusiast Margaret Dunning, titled “Belle of the Concours.”
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Özge has a MSc. in Molecular Genetics from the University of Leicester and a PhD in Developmental Biology from Queen Mary University of London. She worked as a Post-doctoral Research Associate at the University of Leicester for six years in the field of Behavioural Neurology before moving into science communication. She worked as the Research Communication Officer at a London based charity for almost two years.
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Mary M. Chapman began her professional career at United Press International, running both print and broadcast desks. She then became a Michigan correspondent for what is now Bloomberg BNA, where she mainly covered the automotive industry plus legal, tax and regulatory issues. A member of the Automotive Press Association and one of a relatively small number of women on the car beat, Chapman has discussed the automotive industry multiple times of National Public Radio, and in 2014 was selected as an honorary judge at the prestigious Cobble Beach Concours d’Elegance. She has written for numerous national outlets including Time, People, Al-Jazeera America, Fortune, Daily Beast, MSN.com, Newsweek, The Detroit News and Detroit Free Press. The winner of the Society of Professional Journalists award for outstanding reporting, Chapman has had dozens of articles in The New York Times, including two on the coveted front page. She has completed a manuscript about centenarian car enthusiast Margaret Dunning, titled “Belle of the Concours.”
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