Karen Del Vecchio,  —

An avid equestrian and educator based in Virginia, Karen Del Vecchio was diagnosed with Ehlers-Danlos syndrome in 2009 after years searching for a diagnosis that explained her symptoms. Since her diagnosis at the Johns Hopkins Connective Tissues Disorder Clinic, she has worked to find ways to manage her symptoms while still maintaining an active lifestyle. Karen enjoys working with her students, riding and caring for her two horses, Cherry and Spotty, and connecting with others in the rare disease community through her writing.

Articles by Karen Del Vecchio

I’m Trying to Make Lemon Pie

Like many others, I’ve been forced to accept the current situation as our “new normal” for the foreseeable future. On most days, I get up, take care of the hounds and the cats, then hop online to work from home for a few hours. After lunch, I usually head to…

How I Manage Chronic Pain During a Pandemic

I’m pretty sure this is the longest I’ve gone without a massage since I learned that they’re critical to my pain management and well-being. Unfortunately, it doesn’t appear that I’ll be getting one anytime soon. While I’m thankful I’m still functional without massages, I can’t say I’m comfortable. When…

Finding Positivity in Cooking

As I wrote in a recent column, one upside to all the extra time spent at home is that I’ve gotten to spend more time on activities I really enjoy but usually get squeezed out by the lack of time in my busy life. Two weeks ago, I discussed…

Managing Life Without Massage or Pilates

Here in Virginia, all nonessential businesses have been closed for several weeks. Frustratingly, I’m unable to access my two main therapies — massage and Pilates. Both of these activities are critical to my pain management, as massage helps to relax my tight muscles and Pilates remind my body…

Looking for Positive Moments in Life and Books

Like everyone right now, my life and my therapies have been upended by the coronavirus. While it’s easy to get bogged down in all the stress and seemingly all-consuming fear (especially if you turn on the television), the forced downtime has some positives if we remember to look for…

Managing Stress and Uncertain Times with EDS

In this time of uncertainty, stress and anxiety (a very common co-diagnosis with Ehlers-Danlos syndrome) management are critical to my self-care. Like virtually everyone else, my life has been a bit upended recently. But I’m trying to make the best of it that I can, while at the same…

Snow Days Are My Stress Relief Days

I love snow. It doesn’t snow very often where I live, but I sure enjoy when it does. We got about 5 inches of snow last Thursday. I work as a college counselor at a private high school, so I benefited from the decision to close school on Friday. A…