After almost six weeks of being unable to get a massage because my therapist was injured, I finally got…
Karen Del Vecchio
An avid equestrian and educator based in Virginia, Karen Del Vecchio was diagnosed with Ehlers-Danlos syndrome in 2009 after years searching for a diagnosis that explained her symptoms. Since her diagnosis at the Johns Hopkins Connective Tissues Disorder Clinic, she has worked to find ways to manage her symptoms while still maintaining an active lifestyle. Karen enjoys working with her students, riding and caring for her two horses, Cherry and Spotty, and connecting with others in the rare disease community through her writing.
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Articles by Karen Del Vecchio
I haven’t been sleeping restfully this week. I’ve been doing that whole wake-up-and-roll-back-over thing seemingly a dozen times a night.
Last week, I went to the dentist for the first time since the beginning of the pandemic. I had my…
Throughout the past week, the weather has been gorgeous. After weeks of seemingly endless rain, terrible mud that’s taken a…
This week has been busy. After all the rain we’ve had in the mid-Atlantic region recently, the…
This school year has been unique, to say the least. As a high school teacher and college counselor, I’ve…
Is it spring yet? Like for many people in the U.S., the weather in Virginia has been less than stellar…
Over the years, the position in which I’m most comfortable sleeping at night has changed. For most of my life,…
I’m so lucky to be able to have massage therapy every other week. While I wasn’t diagnosed with Ehlers-Danlos syndrome…
I really need to stop doing stupid things and hurting myself. Sheesh. Last September, I…