We had a teacher work day here at school in which we were encouraged to go off campus for lunch…
Karen Del Vecchio
An avid equestrian and educator based in Virginia, Karen Del Vecchio was diagnosed with Ehlers-Danlos syndrome in 2009 after years searching for a diagnosis that explained her symptoms. Since her diagnosis at the Johns Hopkins Connective Tissues Disorder Clinic, she has worked to find ways to manage her symptoms while still maintaining an active lifestyle. Karen enjoys working with her students, riding and caring for her two horses, Cherry and Spotty, and connecting with others in the rare disease community through her writing.
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Articles by Karen Del Vecchio
This spring, my allergies have been terrible. I’ve had seasonal allergies for as long as I can remember, but the…
Injuries, sprains, strains, and bruises are simply a part of life with Ehlers-Danlos syndrome (EDS). Sometimes I know what…
My hip hasn’t bothered me in a while. I guess that means it was about time for it to flare…
After my alarm went off on a recent morning, I rocketed out of bed when I realized I’d hit snooze…
I feel like I wear the same three pairs of shoes to work all the time. I don’t know if…
Some days my body sounds like Rice Krispies that have just had cold milk poured over them. Every time I…
I’ve written about how stubborn I am, and how I don’t let my Ehlers-Danlos syndrome (EDS) keep me from…
About a week and a half ago, I woke up in the middle of the night sleeping on my right…
When I feel that sort-of-painful, sort-of-numb vibe in my right arm and shoulder, I know I’m in trouble. It’s not…