Apparently, I’ve been compiling an unintended list of stupid things not to do when you have Ehlers-Danlos syndrome (EDS).
Karen Del Vecchio
An avid equestrian and educator based in Virginia, Karen Del Vecchio was diagnosed with Ehlers-Danlos syndrome in 2009 after years searching for a diagnosis that explained her symptoms. Since her diagnosis at the Johns Hopkins Connective Tissues Disorder Clinic, she has worked to find ways to manage her symptoms while still maintaining an active lifestyle. Karen enjoys working with her students, riding and caring for her two horses, Cherry and Spotty, and connecting with others in the rare disease community through her writing.
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Articles by Karen Del Vecchio
Over the years, I’ve tried a variety of ways to make myself more comfortable at work, where I’m a teacher…
Last week, I was surprised when building a ramp for my dog didn’t cause my pain to flare up.
Just when I think I know how my Ehlers-Danlos syndrome (EDS) will react in certain situations, I’m always surprised…
I vaguely heard a familiar jingle, which in my fuzzy state, confused me. Why was my alarm going off when…
Do not fall out of a Kubota vehicle. You’re probably thinking, gee, that’s a pretty obvious statement. Yep,…
The past few weeks have been a whirlwind. As a teacher, the end of winter always seems to drag, as…
My right shoulder has been causing me problems for more than 20 years, though I’ve made much progress. The…
When I woke up on a Saturday morning a few weeks ago, I suspected that I might’ve slept in an…
The rising and falling temperatures we’ve been experiencing lately have been challenging for me. With Ehlers-Danlos syndrome (EDS), I…