The Ehlers-Danlos Society is now accepting applications for the second round of two grant programs intended to support research…
Articles by Marisa Wexler, MS
The National Organization for Rare Disorders (NORD)’s RareLaunch training program will host two days of…
A majority of rare disease patients using telehealth during the COVID-19 pandemic thought the experience positive, and many would like…
People with classical Ehlers-Danlos syndrome (EDS) appear to have less multi-organ involvement than those with other types, suggesting that…
A new screening system will allow people with hypermobile Ehlers-Danlos syndrome (hEDS) to participate in the worldwide Hypermobile…
Mutations in the gene SLC39A13 cause a very rare type of Ehlers-Danlos syndrome (EDS) that is characterized by short…
May is Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorder Awareness Month. This year, although in-person events have been canceled due…
The Office of New Drugs (OND) of the U.S. Food and Drug Administration (FDA) has denied an appeal…
The Ehlers-Danlos Society is accepting applications for its spring 2020 research grant program. Grants will support research in…
People with hypermobile Ehlers-Danlos syndrome (hEDS) have larger spaces in the shoulder joint than those without the condition, and…