My chronic pain connects in strange and mysterious ways
Sometimes, when my back pain flares up, I know exactly what caused it. Other times, I have no idea. Last week fell into the “no clue” category. I knew that my back was sore,…
Black and Blue Ribbons
— Karen Del Vecchio
An avid equestrian and educator based in Virginia, Karen Del Vecchio was diagnosed with Ehlers-Danlos syndrome in 2009 after years searching for a diagnosis that explained her symptoms. Since her diagnosis at the Johns Hopkins Connective Tissues Disorder Clinic, she has worked to find ways to manage her symptoms while still maintaining an active lifestyle. Karen enjoys working with her students, riding and caring for her two horses, Cherry and Spotty, and connecting with others in the rare disease community through her writing.
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Overcoming my EDS pain and anxiety before a big trip
The past few weeks have been busy. I’ve missed writing my last two columns because of a trip abroad to spend time with my brother and his family. He’s a school administrator, and his…
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