Well, we’re back to school and we’re rolling! It’s hard to believe that students have been back for nearly three weeks, and I’ve been back for nearly six. I really enjoy my job teaching history and doing college counseling with juniors and seniors, but it can be stressful at…
Black and Blue Ribbons
— Karen Del Vecchio

An avid equestrian and educator based in Virginia, Karen Del Vecchio was diagnosed with Ehlers-Danlos syndrome in 2009 after years searching for a diagnosis that explained her symptoms. Since her diagnosis at the Johns Hopkins Connective Tissues Disorder Clinic, she has worked to find ways to manage her symptoms while still maintaining an active lifestyle. Karen enjoys working with her students, riding and caring for her two horses, Cherry and Spotty, and connecting with others in the rare disease community through her writing.
As I walked outside and felt the heat and humidity envelop me, I realized that summer has arrived early here in Virginia. Summer humidity is sweltering, and so far this year, we’ve been breaking both heat and drought records, which is a really tough combo when, like me, you have…

It’s that time of year again! Summer just flew by, and before I knew it, I was back at work, which for me is school. As a high school history teacher and college counselor, my downtime is minimal when classes are in session. When students recently returned, we were off…
I hadn’t slept well in weeks. I kept doing that whole “wake up, turn over, try to get comfortable” thing, but nothing worked. As someone who manages chronic fatigue due to Ehlers-Danlos syndrome (EDS), this sleep interruption was really difficult. In addition, I kept waking up with extra stiffness…
The past few weeks have been busy, yet so much fun. I was recently able to visit my grandparents, who live out of state, for the first time since the pandemic started. Now that they and the rest of my extended family are vaccinated, we were finally able to get…
Summer is in full swing here, and one fun part for me is seasonal allergies, or hay fever. I deal with both indoor and outdoor allergies year-round, but they tend to be worse in the summer. I’ve noticed over the years that a weather front moving through can sometimes…
It’s crazy how sometimes time seems to simultaneously crawl and fly by. It feels like just yesterday when I was headed to work as a high school history teacher and a college counselor. On the flip side, I’m certain that was a year ago. Although I work longer than most…
It’s a bit hard to believe it’s already summer. Yet, the blistering heat and lack of rain remind me each morning that, yes, it is actually almost July. This past school year has been exceptionally stressful. While my school was fortunate to meet in person nearly the entire time, the…
A few months ago, when I finally returned to the dentist after being fully vaccinated for COVID-19, we talked about redoing my Invisalign. Although I had braces as a teenager, my teeth began to shift again as I got older. While it wasn’t too bad yet, my dentist told me…
As I sit here working on my column, with a heating pad wrapped around my hip to calm down a recent injury, I wonder about the similarities among those of us with various rare disorders. Of course, someone like me…
As I often do, I had an interesting discussion with my rock-star massage therapist Kim last week. She’d been on vacation for a few weeks, so I’d missed a session and was feeling quite sore. My hip, which I injured a few months ago, recently decided to get…
Well, it’s official. The COVID-19 school year is officially complete! For students, at least. As faculty, we still have a few weeks left, but I still can’t believe it’s over already. This year has felt both like it’s lasted an eternity and gone by in a flash. There have been…
Shoes and I have an interesting relationship. I’ve said before that I seem to be much more susceptible to blisters, but my flat feet are a different issue. Like many people with Ehlers-Danlos syndrome (EDS), I’ve always had flat feet. That was one of the many things doctors…
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