I know I write frequently about my massages, but that’s because they are the only treatment available to me, and they keep my pain level under control. This is one reason I find it so frustrating that massage is rarely covered by health insurance. Because my rare disorder doesn’t…
Black and Blue Ribbons
— Karen Del Vecchio

An avid equestrian and educator based in Virginia, Karen Del Vecchio was diagnosed with Ehlers-Danlos syndrome in 2009 after years searching for a diagnosis that explained her symptoms. Since her diagnosis at the Johns Hopkins Connective Tissues Disorder Clinic, she has worked to find ways to manage her symptoms while still maintaining an active lifestyle. Karen enjoys working with her students, riding and caring for her two horses, Cherry and Spotty, and connecting with others in the rare disease community through her writing.
Note: This column describes the author’s experiences with fascial counterstrain therapy (FCS). Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. It’s still hard to believe how much I’ve benefited from adding fascial counterstrain therapy (FCS) to my self-care routine.

After almost six weeks of being unable to get a massage because my therapist was injured, I finally got back in last week. I really needed it, as I’ve been dealing with a pain flare from getting stuck in the mud at the farm where I live. Most of…
I haven’t been sleeping restfully this week. I’ve been doing that whole wake-up-and-roll-back-over thing seemingly a dozen times a night. I’ve been dealing with a pain flare since I got stuck in some thick, deep mud in a pasture at the farm where I live and nearly pulled my…
Last week, I went to the dentist for the first time since the beginning of the pandemic. I had my regular cleaning just before everything shut down last year, and then dentists were either closed or working at reduced capacity for months. After my fall appointment was canceled, I joined…
Throughout the past week, the weather has been gorgeous. After weeks of seemingly endless rain, terrible mud that’s taken a real toll on me physically, and generally depressing weather, it’s been a true mood-lifter to see the sun and milder temperatures. I love many things about winter, such as soups…
This week has been busy. After all the rain we’ve had in the mid-Atlantic region recently, the ground is soaking wet, but we’ve finally had a few days in a row without rain, and the sun has been shining. It’s been amazing! I’ve tried…
This school year has been unique, to say the least. As a high school teacher and college counselor, I’ve been lucky to work at an institution that has made an effort to allow everyone to continue attending in person. We have numerous and extensive measures in place that have…
Is it spring yet? Like for many people in the U.S., the weather in Virginia has been less than stellar lately. We’ve had record-breaking rainfall, and while I’m thankful we’ve been spared the ice storms and frigid conditions of other states, it’s still pretty miserable here. The last two weeks,…
Over the years, the position in which I’m most comfortable sleeping at night has changed. For most of my life, I could only sleep on my stomach. After I was diagnosed and my pain level became more manageable, I slept primarily on my back. Recently, for whatever reason, I seem…
I’m so lucky to be able to have massage therapy every other week. While I wasn’t diagnosed with Ehlers-Danlos syndrome (EDS) until I was 22 and didn’t start regular massages until several years after that, I’ve since learned that they are critical to my well-being and pain…
I really need to stop doing stupid things and hurting myself. Sheesh. Last September, I badly broke my finger and had to have surgery. I now sport a plate and six screws in my right ring finger. Then, just a…
After two weeks of virtual learning to avoid the post-holiday spike in COVID-19 cases, students in the school where I work returned to in-person learning last week. I was nervous about it at first, as I’d gotten used to my little bubble at home and on the farm over the…
Recent Posts
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- Overcoming my fear of pain to get back on the horse — literally April 7, 2026