Last week, I had my first physical therapy (PT) appointment for my broken rib and sprained diaphragm. Even after an initial evaluation, I wasn’t sure what to expect, and I was a bit nervous about our plan to try the Graston technique. In the end, though, it was…
Black and Blue Ribbons
— Karen Del Vecchio

An avid equestrian and educator based in Virginia, Karen Del Vecchio was diagnosed with Ehlers-Danlos syndrome in 2009 after years searching for a diagnosis that explained her symptoms. Since her diagnosis at the Johns Hopkins Connective Tissues Disorder Clinic, she has worked to find ways to manage her symptoms while still maintaining an active lifestyle. Karen enjoys working with her students, riding and caring for her two horses, Cherry and Spotty, and connecting with others in the rare disease community through her writing.
Recently, I got back on a horse for the first time in several months. It’s been six months since a bad fall resulted in a broken rib and healing complications courtesy of my Ehlers-Danlos syndrome (EDS). While I did ride a horse a few times earlier in my…

Sometimes I feel like my Ehlers-Danlos syndrome (EDS) is just plain weird. I can’t always figure out what’s going on or why, which makes it harder to manage. Recently, I’ve been waking up with a stiff neck and back, and sometimes my muscles feel shaky, as if I haven’t…
I’ve had a busy couple of weeks, but I received some good news: After advocating for myself, I was approved to start physical therapy (PT) for my broken rib and sprained diaphragm! Last week, I had an evaluation with the same physical therapist I’ve been seeing since I…
Recovery is such an up-and-down experience. I want to move forward, make progress, and get on with life, but that’s not how recovery works, especially for those of us with Ehlers-Danlos syndrome (EDS). While my overall trajectory is upward, I’m having a tough time with the setbacks and not-so-great…
Last week, my discomfort and frustration with my recent rib and diaphragm injury reached a tipping point. More than anything, I was frustrated by my reactive diaphragm, which made me often feel nauseous. Physical pain I can deal with — those of us with Ehlers-Danlos syndrome (EDS) are used…
It’s been an interesting couple of weeks as I recover from broken ribs and an injured diaphragm. I’m trying to be patient with the healing process, but that’s not something I’m good at! I’d hoped to begin physical therapy (PT) for my diaphragm and sore core muscles, but because broken…
Physical compensation can be such an odd duck to tackle. Right now, I’m struggling not only with broken ribs and an injured diaphragm, but also with the way my body is trying to compensate. I have a lot of back and hip pain, and I noticed recently that…
I stood there staring at a container on the top shelf of my kitchen cabinet, debating if I should reach up for it or not. After falling off my horse about a month ago and winding up with a broken and dislocated rib, I’ve been forced to rest…
Sometimes life teaches us lessons we don’t want to learn. This has been the case for me recently as I deal with a broken and dislocated rib and an injured diaphragm. I’m terrible about pushing myself too hard, usually just plowing forward. I don’t do “slow” well, and…
Did you know you can sprain your diaphragm? I certainly didn’t. Although it’s rare, you can injure it like any other muscle. The past few weeks have been extremely difficult for me after a recent fall off a horse. At first, I thought I’d pulled a muscle in my…
As I leaned over to wash my hands in the restroom, I heard an audible pop. Half a second later, I felt a crunching in my back that I quickly realized was bone scraping against bone. In the next moment, I understood that something in my ribs had moved drastically,…
Ever since I was diagnosed with Ehlers-Danlos syndrome (EDS) at age 22, I’ve been told that horseback riding is good for me; it’s the falling that’s not. No one likes to fall, but it’s a part of riding. Injuries are a risk associated with any sport, although some sports…
Recent Posts
- Overcoming my fear of pain to get back on the horse — literally April 7, 2026
- Taking proactive measures helped me better manage my EDS pain March 31, 2026
- New collaboration launched to improve diagnosis and care for EDS, HSD March 26, 2026
- I’m seeing good results from fascial counterstrain therapy March 24, 2026
- Heavy menstrual bleeding affects 9 in 10 women with EDS: Study March 19, 2026
- Forward progress with physical therapy and Pilates boosts my confidence March 17, 2026
- New study finds autism tied to worse health outcomes in hEDS, HSD March 12, 2026
- New study finds higher vascular complication risk in males with vEDS March 5, 2026
- Zeroing in on ‘fight or flight’ as the reason for my slow recovery from injury March 3, 2026
- Loneliness strongly linked to worse physical and mental health in hEDS February 26, 2026