Remembering to Find the Positives in My Therapies
I try hard not to be negative or to complain too much. Overall, my Ehlers-Danlos syndrome (EDS) is not as bad as it could be, and I’ve found ways to manage most of…
Black and Blue Ribbons
— Karen Del Vecchio
An avid equestrian and educator based in Virginia, Karen Del Vecchio was diagnosed with Ehlers-Danlos syndrome in 2009 after years searching for a diagnosis that explained her symptoms. Since her diagnosis at the Johns Hopkins Connective Tissues Disorder Clinic, she has worked to find ways to manage her symptoms while still maintaining an active lifestyle. Karen enjoys working with her students, riding and caring for her two horses, Cherry and Spotty, and connecting with others in the rare disease community through her writing.
Featured Post
A diaphragm sprain is my latest unexpected injury after a recent fall
Did you know you can sprain your diaphragm? I certainly didn’t. Although it’s rare, you can injure it like any other muscle. The past few weeks have been extremely difficult for me after a…
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