I don’t sit still well. I’m not sure I would’ve survived elementary school if I hadn’t been in a Montessori-style school that allowed me to move around at will, do my math while lying on the floor, and explore new things. I can sit and focus without trouble when I…
Black and Blue Ribbons - a Column by Karen Del Vecchio
I love dogs — I have two rescue dogs — but some days they sure give me a run for my money. I was recently watching a friend’s dogs while she was out of town. My friend lives on a farm, like I do, but her farm is bigger…
A few days ago, I stumbled upon a recent blog post titled “Come As You Are: The Autoimmune Equestrian” on the website Eventing Nation. Eventing, or the triathlon of horse sports, as it’s often called, has a range of levels, from Olympic all the way down to…
I hope everyone had a restful holiday and New Year’s, however you choose to celebrate! Mine didn’t turn out as I had planned. My Ehlers-Danlos syndrome (EDS) threw in some challenges, but thankfully, a little ingenuity managed to help me figure out a workaround. Like most of the country,…
I’ve always loved the holiday season. Even though I can’t embrace it with abandon, as I did as a small child, I still revel in the feelings of Christmas. To me, the holiday season is truly about giving to others. This time of year, people are often gentler to…
After setting off a pain flare with a brief shoulder subluxation, or partial dislocation, a few weeks ago, I’ve thankfully been able to get things under control. Babying it a little bit and getting bodywork from my amazing massage therapist, Kim, brought the pain back to a manageable…
As soon as I felt my shoulder click, I knew I was in trouble. Overall, my body had been doing relatively well recently, without any pain flares. But that subtle feeling in my shoulder let me know the streak was about to come to an end. While I often…
As a teacher, I’m incredibly lucky to have extra time off work around Thanksgiving. It gives me a few days to recharge from the constant chronic fatigue of Ehlers-Danlos syndrome (EDS) before the holiday season kicks into high gear. Since I typically head to my parents’ house, about 45…
Wow, I continue to be overwhelmed by everyone’s responses to my previous two columns about food sensitivities! I had no idea that what I knew was an issue for those of us with Ehlers-Danlos syndrome (EDS) was so prevalent. While these sensitivities can be frustrating at times,…
As I wrote in my last column, I’ve learned that I can’t eat any mammalian products, as they make me quite sick. I’ve never been a big meat eater, so giving up steak and whatnot really wasn’t hard for me. I’ve since found, however, that many meat and dairy…
Recent Posts
- I’m thankful for the lessons learned and progress made in 2025 December 23, 2025
- Walking saps more energy from hypermobile EDS, HSD patients: Study December 18, 2025
- My first physical therapy session went better than I’d hoped December 16, 2025
- People with EDS who have severe pain more likely to use cannabis, cigarettes December 11, 2025
- Trying to understand and manage changing trends in my health December 9, 2025
- Connective tissue damage is severe when EDS meets joint disease December 4, 2025
- My healing journey continues after a physical therapy evaluation December 4, 2025
- Treatments fail to ease muscle, joint pain for most with hEDS, HSD November 20, 2025
- Acknowledging the setbacks in my EDS healing journey is hard work November 18, 2025
- An old EDS injury leads to a miracle pop and free shoulder movement November 11, 2025