Sometimes, when my back pain flares up, I know exactly what caused it. Other times, I have no idea. Last week fell into the “no clue” category. I knew that my back was sore, but it wasn’t until my massage therapist, Kim, really began working on it that I…
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I’m back! I had a fantastic time at my recent work conference and learned so much from the colleagues I met there. Last week, I wrote that I was worried about dining options, as I have food sensitivities from Ehlers-Danlos syndrome as well as alpha-gal syndrome, a…
I’m preparing for a work conference, and for such events my dietary restrictions are a new element I have to consider carefully. Between the general food sensitivities that come with my Ehlers-Danlos syndrome (EDS) and being diagnosed with alpha-gal syndrome, a tick-borne disease that makes me allergic…
It’s the season for dry skin. Between the cold weather and frequent hand-washing, I can’t seem to stay ahead of it. I have a variety of heavy-duty lotions, but sometimes my skin still gets too dry. The worst part about that is the itching. I know, you’re not supposed to…
Back during that crazy cold snap in December, I remembered how amazing heating pads can be. Where I live, houses aren’t built with subzero wind chills in mind. So let’s just say that it got rather nippy inside when the wind chill outdoors hit somewhere around -7 F. I learned…
I don’t sit still well. I’m not sure I would’ve survived elementary school if I hadn’t been in a Montessori-style school that allowed me to move around at will, do my math while lying on the floor, and explore new things. I can sit and focus without trouble when I…
I love dogs — I have two rescue dogs — but some days they sure give me a run for my money. I was recently watching a friend’s dogs while she was out of town. My friend lives on a farm, like I do, but her farm is bigger…
A few days ago, I stumbled upon a recent blog post titled “Come As You Are: The Autoimmune Equestrian” on the website Eventing Nation. Eventing, or the triathlon of horse sports, as it’s often called, has a range of levels, from Olympic all the way down to…
I hope everyone had a restful holiday and New Year’s, however you choose to celebrate! Mine didn’t turn out as I had planned. My Ehlers-Danlos syndrome (EDS) threw in some challenges, but thankfully, a little ingenuity managed to help me figure out a workaround. Like most of the country,…
I’ve always loved the holiday season. Even though I can’t embrace it with abandon, as I did as a small child, I still revel in the feelings of Christmas. To me, the holiday season is truly about giving to others. This time of year, people are often gentler to…
Recent Posts
- Nonprofit’s 2026 EDS Awareness Month goal: Net $100K for research, care April 30, 2026
- Long stretches of driving trigger an EDS pain flare-up April 28, 2026
- Dentists may spot EDS signs during routine exams, study finds April 23, 2026
- Attention, cognitive issues tied to pain, body regulation problems in hEDS April 16, 2026
- Why I am no longer thinking of myself as ‘a mess’ due to EDS April 14, 2026
- New study suggests hypermobile EDS and HSD may share a disease spectrum April 9, 2026
- Overcoming my fear of pain to get back on the horse — literally April 7, 2026
- Taking proactive measures helped me better manage my EDS pain March 31, 2026
- New collaboration launched to improve diagnosis and care for EDS, HSD March 26, 2026
- I’m seeing good results from fascial counterstrain therapy March 24, 2026