One of the great things about working at a school is the time I get off. As someone with Ehlers-Danlos syndrome (EDS), chronic fatigue is my nemesis. I’m always tired. I usually aim to get eight or nine hours of sleep a night, but I still wake up tired.
Usually, negative feelings are rooted in unmet expectations. Examining those expectations and deciding if they are reasonable can be particularly helpful when life changes. I recently adjusted my expectations for the holiday season, and now that we have made it through and are settling into the new year, I can…
Well, it’s officially 2020! It feels odd to say that. Then again, I’m pretty sure I said the same thing back in 2000 and 2010, so I digress. To wrap up 2019, I tried a new activity that I found both beneficial and enjoyable — yoga. My extended family traditionally…
I love the holiday season. Time spent with family, brisk winter air, time off from work (a bonus to working for a school), and giving gifts that make people smile — it’s hard to top that! I also try my best to make sure that my Ehlers-Danlos syndrome (EDS) affects…
As someone with Ehlers-Danlos syndrome (EDS), bruising is just a part of life. I rarely give my bruises more than a passing glance anymore. They’re just of a part of my natural complexion at this point. People who aren’t used to my bruising tend to be pretty shocked, and…
The past few weeks have gone by like a whirlwind. My horse, Cherry, and I had an awesome time at our last show of the season, most of the seniors I work with have finished their college applications, and I got together with two of my closest friends…
While in the mindset of slowing down and allowing myself time to recharge, I decided to take a short vacation. I rarely take time out because I always have so much going on. But I reached out to my two closest friends from college and asked if they wanted…
Summer and fall have been a nonstop whirlwind. A few weeks after graduation (I work as a college counselor at a private high school), the owner of the farm where I live had major knee surgery. That put me on farm duty for several months. My brother got married. And…
In the equestrian sport of eventing, we use a lot of gear. One piece of that puzzle is the safety gear we wear, particularly in the cross-country phase, where we jump solid obstacles in open fields or in the woods. Anytime a horse and rider are out on cross-country, riders…
Recently, Ehlers-Danlos syndrome (EDS) made news headlines. That doesn’t happen often. Actress Lena Dunham announced that she has EDS in response to questions about a photo of her using a mobility aid. While I’d heard her name, I knew little about the actress, but I want to give her…
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