Many people with Ehlers-Danlos syndrome (EDS) experience a form of dysautonomia called postural orthostatic tachycardia syndrome (POTS). Dysautonomia is a disorder of the autonomic nervous system, which controls the body’s subconscious functions including digestion, heart rate, perspiration, and breathing. Symptoms of POTS, predominantly an elevated heart rate, are…
I’ve made a lot of progress in learning how to manage Ehlers-Danlos syndrome (EDS), but I still experience pain flares. My most recent flare improved dramatically after a massage. I was mostly back to normal (at least my version of normal), but then I went to a conference. I…
The past few weeks have been a total whirlwind. I’m a college counselor at a local high school, so September and October are the busiest months for me. They lead up to Nov. 1, which is a major college application deadline. I’m slammed with work and also trying to train…
Injuries happen just like that. It’s usually senseless: a step taken too soon, an unexpected encounter with a door jamb, lifting a handbag on the way out, driving a car. A small, random action can cause a dislocation or subluxation and change the course of the next few days,…
Life never seems to slow down. Every time I think I have time to take a breath and catch up around the house (you know, cleaning, laundry, dishes …), it’s bedtime and I still have a long list of uncompleted chores. That used to cause…
So after last week’s frustration, this week was about refocusing and figuring out what my “side road” would look like. I don’t respond well to the feeling that my Ehlers-Danlos syndrome (EDS) is keeping me from doing something…
Generally speaking, I’m not someone who gets angry. It’s just not my style. I like being productive in all aspects of my life, and I feel that anger is counterproductive. Now, I say that, but I get easily frustrated, which one could argue isn’t far off from anger. But that’s…
Things just don’t slow down for me this time of year. Break? What’s that? The school year is starting. It’s college application season for my seniors, competition season for me, and I’m teaching an additional class this year on top of my already hectic schedule. Sheesh. Sometimes I wonder how…
Ehlers-Danlos syndrome (EDS) is teaching me that I want and need structure in every aspect of my life. Much like the presence of EDS, my need for structure and routine is something that has gone unrecognized for most of my life, despite living with the consequences. Until a few…
I wrote about it in a previous column, but seriously, how did summer go by so quickly? Now don’t get me wrong, I’ll be thrilled when fall and winter get here — I’d rather have cold weather than hot any day — but it seems as if the summer’s…
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