One way of managing a chronic disorder, particularly one that affects physical mobility and causes constant pain, is figuring out what treatment works for you. What helps me may not benefit you, and vice versa. I believe that sometimes a little trial and error…
Columns
Sometimes, we may have so many levels of embedded issues that it can be difficult to know where to start. For my horse Arti and me, massage and acupressure were critical to physical recovery. I don’t remember how I stumbled upon my first massage therapist, but I’m thankful…
To know me, it’s important that you know a bit about my past and the journey to my current style of Ehlers-Danlos syndrome (EDS) management. So, in my next few columns, I’ll cover my history and how various experiences helped me learn the ways I manage EDS. One…
My 22-year Journey to Diagnosis
Ten years ago, at age 22, I was diagnosed with Ehlers-Danlos syndromes (EDS). I’d known there was something “wrong” with me long before I was 22, but despite having a doctor in the family who had been trying to figure out the mystery with several colleagues since I was…
Recent Posts
- I’m thankful for the lessons learned and progress made in 2025 December 23, 2025
- Walking saps more energy from hypermobile EDS, HSD patients: Study December 18, 2025
- My first physical therapy session went better than I’d hoped December 16, 2025
- People with EDS who have severe pain more likely to use cannabis, cigarettes December 11, 2025
- Trying to understand and manage changing trends in my health December 9, 2025
- Connective tissue damage is severe when EDS meets joint disease December 4, 2025
- My healing journey continues after a physical therapy evaluation December 4, 2025
- Treatments fail to ease muscle, joint pain for most with hEDS, HSD November 20, 2025
- Acknowledging the setbacks in my EDS healing journey is hard work November 18, 2025
- An old EDS injury leads to a miracle pop and free shoulder movement November 11, 2025