To know me, it’s important that you know a bit about my past and the journey to my current style of Ehlers-Danlos syndrome (EDS) management. So, in my next few columns, I’ll cover my history and how various experiences helped me learn the ways I manage EDS. One…
Columns
Columns
My 22-year Journey to Diagnosis
Ten years ago, at age 22, I was diagnosed with Ehlers-Danlos syndromes (EDS). I’d known there was something “wrong” with me long before I was 22, but despite having a doctor in the family who had been trying to figure out the mystery with several colleagues since I was…
Recent Posts
- hEDS study points to pain, movement fears as quality-of-life hurdles June 11, 2026
- Eating challenges common among women with self-reported EDS June 4, 2026
- I know my EDS, so advocating for myself after my injury was the right call June 2, 2026
- Hormone blocker reduces ruptured blood vessel risk in VEDS mouse study May 28, 2026
- My latest EDS pain flare felt different — in the best way May 26, 2026
- Celiprolol may help lower risk of fatal vascular complications in vEDS May 21, 2026
- When it comes to EDS issues, there’s often no rhyme or reason May 19, 2026
- Swallowing issues may complicate meals, daily life for people with hEDS May 14, 2026
- Dismissive doctors cause EDS patients to minimize their own pain May 7, 2026
- The benefits of fascial counterstrain therapy just keep accumulating May 5, 2026