One way of managing a chronic disorder, particularly one that affects physical mobility and causes constant pain, is figuring out what treatment works for you. What helps me may not benefit you, and vice versa. I believe that sometimes a little trial and error…
Columns
Sometimes, we may have so many levels of embedded issues that it can be difficult to know where to start. For my horse Arti and me, massage and acupressure were critical to physical recovery. I don’t remember how I stumbled upon my first massage therapist, but I’m thankful…
To know me, it’s important that you know a bit about my past and the journey to my current style of Ehlers-Danlos syndrome (EDS) management. So, in my next few columns, I’ll cover my history and how various experiences helped me learn the ways I manage EDS. One…
My 22-year Journey to Diagnosis
Ten years ago, at age 22, I was diagnosed with Ehlers-Danlos syndromes (EDS). I’d known there was something “wrong” with me long before I was 22, but despite having a doctor in the family who had been trying to figure out the mystery with several colleagues since I was…
Recent Posts
- Pelvic muscle, nerve dysfunction may drive urinary symptoms in hEDS July 24, 2026
- Study finds higher allergy rates in children with hypermobile EDS July 17, 2026
- Hypermobility signs common in women with pelvic pain, study finds July 10, 2026
- Signing off after 7 great years as an EDS columnist July 9, 2026
- Psychiatric drugs don’t affect heart rhythms in hEDS, study finds June 25, 2026
- hEDS patients report less pain with long-term medical cannabis use June 18, 2026
- I’m trying to be patient with my healing process under an unusually hot sun June 16, 2026
- hEDS study points to pain, movement fears as quality-of-life hurdles June 11, 2026
- Eating challenges common among women with self-reported EDS June 4, 2026
- I know my EDS, so advocating for myself after my injury was the right call June 2, 2026