News

Long-term medical cannabis use may help ease pain related to hypermobility for some people with Ehlers-Danlos syndrome (EDS), according to a U.K.-based registry study. The researchers assessed treatment outcomes among people with extremely flexible joints, including individuals with hypermobile EDS (hEDS), who used medical cannabis for at least…

Women in a small study of hypermobile Ehlers-Danlos syndrome (hEDS) reported chronic pain and high rates of kinesiophobia, or fear of movement or activity, both of which were associated with worse mental health scores and lower physical function. Despite a history of adult…

Women with self-reported Ehlers-Danlos syndrome (EDS), many with the hypermobile form, commonly reported digestive symptoms and altered eating behaviors, with more than one-third considered at risk of having an eating disorder, a study found. Many participants reported food allergies, painful or fearful eating, and digestive symptoms, while some also…

Blocking certain steroid hormone signaling helped reduce the risk of life-threatening blood vessel rupture in a mouse model of vascular Ehlers-Danlos syndrome (VEDS), according to a new study. Unexpected tears in the aorta, the largest blood vessel in the body, are a major concern in VEDS. Using a mouse…

Celiprolol may help lower the risk of fatal vascular complications while also providing psychological reassurance for people with vascular Ehlers-Danlos syndrome (vEDS), according to the first study of the treatment conducted outside Europe. In the Japanese study, nearly half of the patients experienced no vascular or nonvascular complications…

Difficulty swallowing, or dysphagia, can be a significant problem in hypermobile Ehlers-Danlos syndrome (hEDS), and may occur alongside gastrointestinal issues that can require supplemental or alternative nutrition or hydration, according to a small U.S. study. Dysphagia appeared to be related to underlying hEDS symptoms and related conditions, including gastrointestinal…

Dismissive attitudes from healthcare providers can lead people with Ehlers-Danlos syndrome (EDS) to doubt their own experiences of chronic pain, a study found. Researchers found that EDS patients facing skepticism from care providers will often end up minimizing their own pain — and as a result, their pain doesn’t…

May is EDS Awareness Month, an annual event in which advocates around the world work to increase awareness of Ehlers-Danlos syndrome (EDS) and other hypermobility spectrum disorders, and fundraise on behalf of those living with these genetic conditions. For this year’s awareness month, the Ehlers-Danlos Society — a global…

Dentists may help diagnose Ehlers-Danlos syndrome (EDS) by identifying certain oral changes during routine examinations. EDS patients were significantly more likely to have inflamed gums, underdeveloped mouth tissues, jaw joint pain, jaw joint movement and dislocations, and unusual changes in their tooth roots and inner tooth structure, according to…

People with hypermobile Ehlers-Danlos syndrome (hEDS) may have impaired cognitive function, including lower attention and executive function abilities, a new study in Germany shows. Among hEDS patients, executive functioning — the set of cognitive processes used to solve problems, make plans, and manage emotions — appeared to depend on…