News

People with hypermobile Ehlers-Danlos syndrome (hEDS) face a significantly higher risk for a wide range of complex health issues, including heart rate disorders, digestive problems, and postural orthostatic tachycardia syndrome (POTS), according to a new global study. Based on survey data from more than 2,500 patients, the research highlights…

People with Ehlers-Danlos syndrome (EDS) frequently experience self-doubt about their pain and other symptoms, often in the context of skepticism they encounter from clinicians, according to a new U.S. study. The research found that nearly three-quarters of participants questioned the severity — and sometimes even the reality — of…

The functioning of platelets, the tiny cell fragments that help blood clot, is impaired in people with Ehlers-Danlos syndrome (EDS), likely contributing to an increased risk of bruising and bleeding, a new study reveals. Researchers found that altered receptor signaling in platelets appeared to drive these defects in both…

People living with hypermobile Ehlers-Danlos syndrome (hEDS) and hypermobility spectrum disorders (HDS) often follow dietary patterns that are high in protein and fat but low in calories, fiber, and essential vitamins. A new study from the U.K. suggests these restrictive eating habits,…

Compression garments are well tolerated and may reduce pain and the use of pain medications in people with hypermobile Ehlers-Danlos syndrome (hEDS) or hypermobility spectrum disorders (HSD). That’s according to a recent study, which demonstrates that treatment response, reported in 80% of participants, was associated with a longer time…

Walking requires significantly more energy for people with hypermobile Ehlers–Danlos syndrome (hEDS) and hypermobile spectrum disorder (HSD), according to a new study from Canada. According to the findings, people with hEDS/HSD activate their calf muscles more to stabilize a weaker ankle joint during walking and rely…

People with Ehlers-Danlos syndrome (EDS) or generalized hypermobility spectrum disorder (HSD) who experience more severe pain tend to use more cannabis and cigarettes, according to a study by researchers in Canada. The study, “Associations Between Pain and Substance Use Among Individuals Diagnosed with Ehlers-Danlos Syndromes or Generalized Hypermobility…

New research shows that the complex, overlapping symptoms of Ehlers-Danlos syndrome (EDS) and spondyloarthritis (SpA) are linked to pronounced physical changes in the body’s connective tissue. A study using ultrasound scans found that people living with both conditions experience significantly greater thickening, or densification, of a deep tissue layer…

Most people with hypermobile Ehlers-Danlos syndrome (hEDS) or hypermobility spectrum disorders (HSD) report that therapeutic approaches, including medications and other therapies, do not help ease their muscle and joint pain. Indeed, fewer than 30% of hEDS and HSD patients, when given a list of 17 treatment modalities in a…

A novel minimally invasive surgical procedure called percutaneous transhepatic coil embolization was successfully used to treat an aneurysm in a 17-year-old boy with vascular Ehlers–Danlos syndrome (vEDS), a new study reports. “This case highlights the importance of an integrative multidisciplinary approach in managing complex vascular emergencies and successfully demonstrates…