News

Urinary tract issues frequent in EDS patients: Review

People with Ehlers-Danlos syndrome (EDS) frequently experience urinary problems, most commonly urinary incontinence and pelvic organ prolapse, according to a review study. Urinary incontinence is the involuntary release of urine. Pelvic organ prolapse occurs when pelvic organs, such as the bladder, parts of the large intestine, or reproductive organs,…

Autonomic nervous system out of balance in people with hEDS: Study

Young adults with hypermobile Ehlers-Danlos syndrome (hEDS) exhibit signs of an imbalance in the body’s autonomic nervous system, according to a recent study. The autonomic nervous system is responsible for regulating involuntary bodily functions such as heart rate, blood pressure, breathing, and digestion. The observed imbalance was linked to…

Parents share challenges of raising children with hypermobile EDS

In a new study, parents highlight the challenges of raising children with hypermobile Ehlers-Danlos syndrome (hEDS), including emotional distress, difficulties interacting with healthcare professionals, and struggles accessing medical and psychological support. Researchers stress the need for family-focused interventions to improve the physical and psychological health of hEDS children and…

C-sections may reduce risks for pregnant women with vEDS: Study

Women with vascular Ehlers-Danlos syndrome (vEDS) are at high risk of uterine rupture, issues in blood vessels, and death during pregnancy, particularly in the period around delivery. “To avoid expulsive efforts [active pushing], a caesarean section should be scheduled at 37 weeks of gestation,” researchers wrote. The study, “…

Creatine monohydrate supplement eased woman’s hEDS fatigue

A creatine monohydrate supplement eased chronic pain and fatigue in a woman with hypermobile Ehlers-Danlos syndrome (hEDS), a case report said. Creatine monohydrate has well-established benefits to muscle strength and overall athletic performance. Creatine — derived from three amino acids, the building blocks of proteins — is naturally…

Researchers urge doctors to talk social media with hEDS patients

Researchers called on doctors to initiate conversations about social media with their hypermobile Ehlers-Danlos syndrome (hEDS) patients to help them find tools they can use and avoid misinformation. People with hEDS frequently use social media to connect with each other and learn about their disease, though social media can…

Constipation, digestive symptoms common in young hEDS patients

Constipation and trouble swallowing are common digestive symptoms in children and young adults with joint hypermobility syndrome or hypermobile Ehlers-Danlos syndrome (hEDS), according to a single-center study in the U.S. Also, about 20% of patients had eosinophilic esophagitis, an allergic reaction in the esophagus — the muscular tube that…

Jaw pain disorders highly prevalent in women with hEDS: Study

Jaw pain, fatigue, and other symptoms of temporomandibular disorders (TMD) are quite common in women with hypermobile Ehlers-Danlos syndrome (hEDS) or hypermobility spectrum disorders (HSD), according to a recent study from Sweden and Finland. TMD are conditions affecting the joint that connects the jawbone to the skull. They may…