News

Heavy menstrual bleeding affects nearly 9 in 10 women with Ehlers-Danlos syndrome (EDS), with half experiencing severe bleeding, a new study reports. Despite this high burden, many women experience extended delays in EDS diagnosis — often after emergency visits, transfusions, and major surgeries to treat heavy menstrual bleeding.

People with hypermobile Ehlers-Danlos syndrome (hEDS) or hypermobility spectrum disorder (HSD) may experience greater physical and mental health challenges when they also have autism, a survey study in the U.K. suggests. Drawing on responses from more than 1,700 participants, researchers found that autistic participants more often reported pain, sleep…

Males with vascular Ehlers-Danlos syndrome (vEDS) face a higher risk of certain blood vessel complications and poorer survival than female patients, according to a large study. By analyzing data from more than 550 people with vEDS, researchers found that males were more likely to develop aortic and arterial disease…

Being lonely is strongly associated with worse mental and physical health in people with hypermobile Ehlers-Danlos syndrome (hEDS), a new study suggests. Support from friends appears to play a meaningful role, while dog companionship may provide emotional benefits for some individuals. “Our findings suggest that loneliness is a potent…

Women at midlife and older age with hypermobile Ehlers-Danlos syndrome (hEDS) and hypermobile spectrum disorder (HSD) experience long diagnostic delays, multiple coexisting health conditions, and poor health-related quality of life, according to a U.S. survey. The survey, conducted by Linda K. Anderson, PhD, an adjunct assistant research professor…

Multiple genetic changes across three major biological systems appear to contribute to hypermobile Ehlers-Danlos syndrome (hEDS), according to a new study that used advanced genetic testing and artificial intelligence (AI). As in other types of EDS, researchers found changes in genes involved in the production of collagen, a key…

People with hypermobile Ehlers-Danlos syndrome (hEDS) face a significantly higher risk for a wide range of complex health issues, including heart rate disorders, digestive problems, and postural orthostatic tachycardia syndrome (POTS), according to a new global study. Based on survey data from more than 2,500 patients, the research highlights…

People with Ehlers-Danlos syndrome (EDS) frequently experience self-doubt about their pain and other symptoms, often in the context of skepticism they encounter from clinicians, according to a new U.S. study. The research found that nearly three-quarters of participants questioned the severity — and sometimes even the reality — of…

The functioning of platelets, the tiny cell fragments that help blood clot, is impaired in people with Ehlers-Danlos syndrome (EDS), likely contributing to an increased risk of bruising and bleeding, a new study reveals. Researchers found that altered receptor signaling in platelets appeared to drive these defects in both…

People living with hypermobile Ehlers-Danlos syndrome (hEDS) and hypermobility spectrum disorders (HDS) often follow dietary patterns that are high in protein and fat but low in calories, fiber, and essential vitamins. A new study from the U.K. suggests these restrictive eating habits,…