News

Walking requires significantly more energy for people with hypermobile Ehlers–Danlos syndrome (hEDS) and hypermobile spectrum disorder (HSD), according to a new study from Canada. According to the findings, people with hEDS/HSD activate their calf muscles more to stabilize a weaker ankle joint during walking and rely…

People with Ehlers-Danlos syndrome (EDS) or generalized hypermobility spectrum disorder (HSD) who experience more severe pain tend to use more cannabis and cigarettes, according to a study by researchers in Canada. The study, “Associations Between Pain and Substance Use Among Individuals Diagnosed with Ehlers-Danlos Syndromes or Generalized Hypermobility…

New research shows that the complex, overlapping symptoms of Ehlers-Danlos syndrome (EDS) and spondyloarthritis (SpA) are linked to pronounced physical changes in the body’s connective tissue. A study using ultrasound scans found that people living with both conditions experience significantly greater thickening, or densification, of a deep tissue layer…

Most people with hypermobile Ehlers-Danlos syndrome (hEDS) or hypermobility spectrum disorders (HSD) report that therapeutic approaches, including medications and other therapies, do not help ease their muscle and joint pain. Indeed, fewer than 30% of hEDS and HSD patients, when given a list of 17 treatment modalities in a…

A novel minimally invasive surgical procedure called percutaneous transhepatic coil embolization was successfully used to treat an aneurysm in a 17-year-old boy with vascular Ehlers–Danlos syndrome (vEDS), a new study reports. “This case highlights the importance of an integrative multidisciplinary approach in managing complex vascular emergencies and successfully demonstrates…

A possible link has been suggested between Ehlers-Danlos syndrome (EDS) and idiopathic intracranial hypertension (IIH), a condition in which pressure builds up in the skull without an obvious cause. In a case series, a team of U.S. researchers described three women with EDS who showed signs of elevated intracranial…

A man with myopathic Ehlers-Danlos syndrome (mEDS) was able to retain motor function because of the interaction of two separate mutations in the COL12A1 gene, according to a case report. The man had brain issues as well: Chiari malformation type 1, a condition in which the cerebellum (a brain region…

A new smartphone app, called the Hypermobility Assessment Tool (HAT), may aid in earlier and more accurate screening for Ehlers-Danlos syndrome (EDS). Powered by artificial intelligence (AI), the app uses a smartphone camera to analyze how a person moves and identify hypermobile joints, a hallmark sign of EDS. Approved by…

Weight loss surgery, medically known as metabolic and bariatric surgery, or MBS, can be safely performed in people with hypermobile Ehlers-Danlos syndrome (hEDS), according to two U.S. researchers behind a new case report. The team detailed the case of a woman in California with hEDS who underwent two types…

A promising surgical technique involving a skin transplant followed by an application of “spray-on skin cells” may help wounds to heal in people with Ehlers-Danlos syndrome (EDS), according to a recent case report. The report is the first to document the use of this regenerative cell technology, typically used…