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In a new study, parents highlight the challenges of raising children with hypermobile Ehlers-Danlos syndrome (hEDS), including emotional distress, difficulties interacting with healthcare professionals, and struggles accessing medical and psychological support. Researchers stress the need for family-focused interventions to improve the physical and psychological health of hEDS children and…

Stretch marks in the esophagus, the muscular tube that carries food and liquid into the stomach, are a potential new sign of hypermobile Ehlers-Danlos syndrome (EDS), according to a case report from Germany describing a woman in her 20s with hEDS — the most common form of the…

Women with vascular Ehlers-Danlos syndrome (vEDS) are at high risk of uterine rupture, issues in blood vessels, and death during pregnancy, particularly in the period around delivery. “To avoid expulsive efforts [active pushing], a caesarean section should be scheduled at 37 weeks of gestation,” researchers wrote. The study, “…

A creatine monohydrate supplement eased chronic pain and fatigue in a woman with hypermobile Ehlers-Danlos syndrome (hEDS), a case report said. Creatine monohydrate has well-established benefits to muscle strength and overall athletic performance. Creatine — derived from three amino acids, the building blocks of proteins — is naturally…

Researchers called on doctors to initiate conversations about social media with their hypermobile Ehlers-Danlos syndrome (hEDS) patients to help them find tools they can use and avoid misinformation. People with hEDS frequently use social media to connect with each other and learn about their disease, though social media can…

Constipation and trouble swallowing are common digestive symptoms in children and young adults with joint hypermobility syndrome or hypermobile Ehlers-Danlos syndrome (hEDS), according to a single-center study in the U.S. Also, about 20% of patients had eosinophilic esophagitis, an allergic reaction in the esophagus — the muscular tube that…

About every third child with Ehlers-Danlos syndrome (EDS) and every fourth with generalized joint hypermobility at a clinic in Canada had one or more bone fractures, but none had occurred in the first year of life, a study finds. Most fractures were in the limbs as the result of…

Jaw pain, fatigue, and other symptoms of temporomandibular disorders (TMD) are quite common in women with hypermobile Ehlers-Danlos syndrome (hEDS) or hypermobility spectrum disorders (HSD), according to a recent study from Sweden and Finland. TMD are conditions affecting the joint that connects the jawbone to the skull. They may…

Being male and having certain facial features, high blood pressure, and some disease-causing mutations all are risk factors for the occurrence of major blood-vessel-related events and/or an early age at the time of their onset among people with vascular Ehlers-Danlos syndrome (vEDS), a…

An altered breathing pattern in hypermobile Ehlers–Danlos syndrome (hEDS) may be linked to difficulty sensing how much air fills the lungs with each breath and in controlling ventilation, especially when engaging in a cognitive task, a study suggests. The study, “Impairment of lung volume perception and breathing control…