Filing a Treatment Plan with School When Your Child Has EDS

Emily Malcolm, PhD avatar

by Emily Malcolm, PhD |

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Managing Ehlers-Danlos syndrome (EDS) can be challenging, especially in a school environment. Many parents find it difficult to ensure that their child receives a good education while balancing safety and disease management.

Developing an individualized education plan with the school can help to ensure that your child receives any necessary accommodations. It can also be helpful to file a treatment plan with the school, especially if your child needs treatment during the school day.

What is a treatment plan?

A treatment plan contains information about your child’s disease, its management, and what to do in case of an emergency. If your child has dietary requirements, they should be included in the treatment plan.

How to get started when preparing a treatment plan?

Begin by talking with your child’s physician about the treatment plan. Then meet with the school nurse and discuss the treatment plan and your child’s needs.

What needs to be on file?

Make sure that the nurse has your contact numbers on file for emergencies, and notify them immediately of any changes. You may also want to make sure that the school office and administration are aware that your child has special requirements.

Depending on your child’s needs, you may need to have their primary care physician’s number on file with the school in case of an emergency.

Make sure that the treatment plan on file at the school is updated after each doctor’s visit, whether or not there have been any changes.


Last updated: Dec. 12, 2019


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