Menstruating When You Have EDS

Menstruating When You Have EDS
0
(0)

Ehlers-Danlos syndrome (EDS) refers to a group of genetic disorders that affect the connective tissue. The disease is caused by genetic mutations that make the connective tissue weak. This affects different organs and systems in the body.

About menstruation

Menstruation is the monthly process a woman’s body goes through in preparation for a potential pregnancy. Every month, the ovaries release an egg in a process called ovulation. During this process, a series of hormonal changes prepare the uterus for pregnancy. If a sperm doesn’t fertilize the egg, the lining of the uterus sheds blood and tissue through the vagina. This is called menstruation.

Menstruation with EDS

A small study of teens and young women with EDS demonstrated that women with EDS frequently experience menstrual problems, but doctors rarely refer patients to gynecological care for these problems.

A survey of women with EDS reported that only 32.8% of patients had a normal menstrual cycle. About 18% of patients had bleeding between periods. Nearly 33% of patients had a heavy menstrual flow. The vast majority of participants (92.5%) experienced painful cramps during menstruation. The reasons for this are not clear.

How do doctors treat menstrual problems?

You should discuss your symptoms and medications with your primary care physician and your gynecologist. Because EDS is a rare disease, your gynecologist may need to consult with your primary care physician to determine the best treatment for you. It is not uncommon to have to try several different medications to find the right one.

You can use hormonal birth control pills to regulate your menstrual cycle and reduce some symptoms such as cramping and heavy bleeding. However, it is important to remember that some of these treatments containing estrogen can make EDS comorbidities more severe.

Some patients may need pain medication to manage cramping. Most patients can use over-the-counter medications such as ibuprofen. However, remember that ibuprofen can be harmful if used over long periods of time or in EDS patients with a condition called mast cell activation syndrome.

 

Last updated: April 14, 2020

***

Ehlers-Danlos News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Emily holds a Ph.D. in Biochemistry from the University of Iowa and is currently a postdoctoral scholar at the University of Wisconsin-Madison. She graduated with a Masters in Chemistry from the Georgia Institute of Technology and holds a Bachelors in Biology and Chemistry from the University of Central Arkansas. Emily is passionate about science communication, and, in her free time, writes and illustrates children’s stories.
Total Posts: 0
Özge has a MSc. in Molecular Genetics from the University of Leicester and a PhD in Developmental Biology from Queen Mary University of London. She worked as a Post-doctoral Research Associate at the University of Leicester for six years in the field of Behavioural Neurology before moving into science communication. She worked as the Research Communication Officer at a London based charity for almost two years.
×
Emily holds a Ph.D. in Biochemistry from the University of Iowa and is currently a postdoctoral scholar at the University of Wisconsin-Madison. She graduated with a Masters in Chemistry from the Georgia Institute of Technology and holds a Bachelors in Biology and Chemistry from the University of Central Arkansas. Emily is passionate about science communication, and, in her free time, writes and illustrates children’s stories.
Latest Posts
  • menstruation and EDS
  • EDS inheritance
  • lack of motivation, EDS
  • EDS support network and groups

How useful was this post?

Click on a star to rate it!

Average rating 0 / 5. Vote count: 0

No votes so far! Be the first to rate this post.

As you found this post useful...

Follow us on social media!

We are sorry that this post was not useful for you!

Let us improve this post!

Tell us how we can improve this post?