I’ve written about how stubborn I am, and how I don’t let my Ehlers-Danlos syndrome (EDS) keep me from…
Karen Del Vecchio
An avid equestrian and educator based in Virginia, Karen Del Vecchio was diagnosed with Ehlers-Danlos syndrome in 2009 after years searching for a diagnosis that explained her symptoms. Since her diagnosis at the Johns Hopkins Connective Tissues Disorder Clinic, she has worked to find ways to manage her symptoms while still maintaining an active lifestyle. Karen enjoys working with her students, riding and caring for her two horses, Cherry and Spotty, and connecting with others in the rare disease community through her writing.
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Articles by Karen Del Vecchio
About a week and a half ago, I woke up in the middle of the night sleeping on my right…
When I feel that sort-of-painful, sort-of-numb vibe in my right arm and shoulder, I know I’m in trouble. It’s not…
Sometimes managing Ehlers-Danlos syndrome (EDS) feels like choosing the lesser of two evils. Should I do something that helps…
I often think about how my Ehlers-Danlos syndrome (EDS) is affected by the weather. I also wonder whether the…
The past couple weeks have been cold and stressful, so I needed a bit of a pick-me-up. I turned to…
It’s been really cold here in Virginia recently. I’m a New Englander at heart, so I really don’t mind the…
There are times when life with Ehlers-Danlos syndrome feels like a revolving door of minor injuries and sprains. Of course,…
The last couple of weeks have been fun, but stressful. I love the holiday season, but that doesn’t mean…
Recently, a reader asked me about Ehlers-Danlos syndrome (EDS) support groups and other organizations, and various ways of handling…