Spotting a Sign of EDS in My Younger, Undiagnosed Self
Last weekend, I had a chance to go to my parents’ house for a while. They live only about 45 minutes away, but with everything I’ve had going on at work recently, I’ve been so busy I haven’t…
An avid equestrian and educator based in Virginia, Karen Del Vecchio was diagnosed with Ehlers-Danlos syndrome in 2009 after years searching for a diagnosis that explained her symptoms. Since her diagnosis at the Johns Hopkins Connective Tissues Disorder Clinic, she has worked to find ways to manage her symptoms while still maintaining an active lifestyle. Karen enjoys working with her students, riding and caring for her two horses, Cherry and Spotty, and connecting with others in the rare disease community through her writing.
Get regular updates to your inbox.