Last fall, I repeatedly woke up quite sore, and it finally dawned on me that I needed a new mattress. Great! Easy fix, right? Well, it should have been — if I hadn’t forgotten to do it. You might be wondering, “How in the world do you forget to…
Black and Blue Ribbons
— Karen Del Vecchio

An avid equestrian and educator based in Virginia, Karen Del Vecchio was diagnosed with Ehlers-Danlos syndrome in 2009 after years searching for a diagnosis that explained her symptoms. Since her diagnosis at the Johns Hopkins Connective Tissues Disorder Clinic, she has worked to find ways to manage her symptoms while still maintaining an active lifestyle. Karen enjoys working with her students, riding and caring for her two horses, Cherry and Spotty, and connecting with others in the rare disease community through her writing.
Over the past several weeks, I realized just how exhausted I was as winter break approached. As a teacher, I’m fortunate to have time off for the holidays, and this year I needed it more than ever. Instead of traveling, I spent my break catching up on things at home,…

Every summer, I face the same conundrum: Do I wear shorts and skirts, or not? My answer tends to vary, but this year, I bought myself a few new pairs of shorts that I’ve already worn several times. I’m not sure I had any shorts I actually liked last…
Now that this crazy school year is out and I have a few weeks off, I’ve tried to come up with a plan for the summer to help me reset and recharge so that I can be ready for whatever the upcoming school year throws at me. With COVID-19…
Hello, readers! I’m so glad to be back with you all. I realize that I suddenly vanished from my column last fall, but now that the school year is finished, I’ve returned. This past year of teaching was the hardest one I’ve experienced, and I had to make some tough…
I must have slept funny last week because I woke up one day with stiff and sore muscles in my neck that turned into quite a headache. I sometimes get referred pain in my neck because of a sports injury I sustained to my right shoulder as a…
When I look back at all the physical activities I used to do growing up, it’s hard to believe I was never scared of injuring myself. I can no longer imagine myself in the thick of a physical soccer game without also thinking about getting hurt. Back then, I was…
Anyone who rides a horse knows that no matter how careful you are, sometimes you’re going to fall. I had my first fall in a year a couple weeks ago. Cherry has been an exceptionally well-behaved and safe horse for me, but falling is part of riding an animal that…
My Old Shoulder Injury Flared Up
Well, we’re back to school and we’re rolling! It’s hard to believe that students have been back for nearly three weeks, and I’ve been back for nearly six. I really enjoy my job teaching history and doing college counseling with juniors and seniors, but it can be stressful at…
It’s that time of year again! Summer just flew by, and before I knew it, I was back at work, which for me is school. As a high school history teacher and college counselor, my downtime is minimal when classes are in session. When students recently returned, we were off…
I hadn’t slept well in weeks. I kept doing that whole “wake up, turn over, try to get comfortable” thing, but nothing worked. As someone who manages chronic fatigue due to Ehlers-Danlos syndrome (EDS), this sleep interruption was really difficult. In addition, I kept waking up with extra stiffness…
The past few weeks have been busy, yet so much fun. I was recently able to visit my grandparents, who live out of state, for the first time since the pandemic started. Now that they and the rest of my extended family are vaccinated, we were finally able to get…
Summer is in full swing here, and one fun part for me is seasonal allergies, or hay fever. I deal with both indoor and outdoor allergies year-round, but they tend to be worse in the summer. I’ve noticed over the years that a weather front moving through can sometimes…
Recent Posts
- I’ve been slowing down lately while continuing to recover from a fall January 13, 2026
- Compression garment use may reduce pain in hypermobile EDS, HSD: Study January 8, 2026
- I’m thankful for the lessons learned and progress made in 2025 December 23, 2025
- Walking saps more energy from hypermobile EDS, HSD patients: Study December 18, 2025
- My first physical therapy session went better than I’d hoped December 16, 2025
- People with EDS who have severe pain more likely to use cannabis, cigarettes December 11, 2025
- Trying to understand and manage changing trends in my health December 9, 2025
- Connective tissue damage is severe when EDS meets joint disease December 4, 2025
- My healing journey continues after a physical therapy evaluation December 4, 2025
- Treatments fail to ease muscle, joint pain for most with hEDS, HSD November 20, 2025