As I woke up and realized that I’d been sleeping on my right side, I started inwardly cursing. Nothing good ever comes from me rolling over in my sleep and landing on my right side. In fact, it’s usually a recipe for severe pain, as my badly damaged right shoulder…
Black and Blue Ribbons
— Karen Del Vecchio

An avid equestrian and educator based in Virginia, Karen Del Vecchio was diagnosed with Ehlers-Danlos syndrome in 2009 after years searching for a diagnosis that explained her symptoms. Since her diagnosis at the Johns Hopkins Connective Tissues Disorder Clinic, she has worked to find ways to manage her symptoms while still maintaining an active lifestyle. Karen enjoys working with her students, riding and caring for her two horses, Cherry and Spotty, and connecting with others in the rare disease community through her writing.
Recently, I got back on a horse for the first time in several months. It’s been six months since a bad fall resulted in a broken rib and healing complications courtesy of my Ehlers-Danlos syndrome (EDS). While I did ride a horse a few times earlier in my…

Not everything that happens to me is related to my Ehlers-Danlos syndrome (although much of it is!). Sometimes accidents happen simply because I’m human. My current nemesis is a ganglion cyst in my right index finger, courtesy of the fact that I accidentally dropped a square beam (6…
As I stood up for what felt like the 50th time that day, my knees, back, and hips protested loudly. When I moved into my house awhile back, I put down waterproof plank flooring over the hardwood that was there. The original was nice, but it needed to be refinished…
The end of the school year is always chaotic, and the arrival of warm weather, since I work on a farm, leads to plenty of outdoor chores. All of these responsibilities and the seemingly never-ending to-do lists can cause anxiety, which I manage and is a common co-diagnosis for those…
Spring is a busy time of year for me. Not only is school racing toward the finish line, but spring chores are ramping up on the small horse farm where I live. The grass is growing, flower beds need to be tended, and a variety of other maintenance must be…
We had a teacher work day here at school in which we were encouraged to go off campus for lunch with colleagues. A small group of us headed to a local Mexican restaurant that had just opened. We were all excited to try the food. But sometimes eating out can…
This spring, my allergies have been terrible. I’ve had seasonal allergies for as long as I can remember, but the past few weeks have been some of the worst I’ve experienced in years. I was hoping that the long cold snap we had this past winter would’ve led to fewer…
Injuries, sprains, strains, and bruises are simply a part of life with Ehlers-Danlos syndrome (EDS). Sometimes I know what causes them, and other times I’m clueless. I’m not sure if it’s better to know or not. If I know, I can try to avoid those activities in the future,…
My hip hasn’t bothered me in a while. I guess that means it was about time for it to flare up and remind me that it’s there! That’s how it tends to go with me and my Ehlers-Danlos syndrome (EDS). Some ailments are constant, such as the ones in…
After my alarm went off on a recent morning, I rocketed out of bed when I realized I’d hit snooze so many times that it was more than 30 minutes past when I was supposed to be up. Racing to catch up and get out the door is never a…
I feel like I wear the same three pairs of shoes to work all the time. I don’t know if anyone else notices, but I do. Sometimes I feel self-conscious about it, but the shoes are comfortable. I’ve had issues with plantar fasciitis in the past, and I get blisters…
Some days my body sounds like Rice Krispies that have just had cold milk poured over them. Every time I move I snap, crackle, and pop! With my Ehlers-Danlos syndrome (EDS), there are times when I can’t move without making noise — though sometimes that’s from me groaning as…
Recent Posts
- Overcoming my fear of pain to get back on the horse — literally April 7, 2026
- Taking proactive measures helped me better manage my EDS pain March 31, 2026
- New collaboration launched to improve diagnosis and care for EDS, HSD March 26, 2026
- I’m seeing good results from fascial counterstrain therapy March 24, 2026
- Heavy menstrual bleeding affects 9 in 10 women with EDS: Study March 19, 2026
- Forward progress with physical therapy and Pilates boosts my confidence March 17, 2026
- New study finds autism tied to worse health outcomes in hEDS, HSD March 12, 2026
- New study finds higher vascular complication risk in males with vEDS March 5, 2026
- Zeroing in on ‘fight or flight’ as the reason for my slow recovery from injury March 3, 2026
- Loneliness strongly linked to worse physical and mental health in hEDS February 26, 2026